Children; Chronic illness; Intersectionality; Migration; Scoping review; Young people
Abstract :
[en] [en] BACKGROUND: Chronic illnesses (CIs) are increasingly prevalent among children/young people (CYP) globally. For migrant CYP with CIs, achieving a stable life in a new country can be particularly challenging due to additional barriers such as cultural and language differences, unsafe living conditions, and discrimination. While migration can sometimes improve healthcare access by introducing new models of care and ways of understanding health, these advantages are often outweighed by obstacles that hinder access to essential services. This review aimed to map the global evidence on post-migration experiences and outcomes of CYP with CIs and to identify priorities for research, policy, and practice to improve their care.
METHODS: A scoping review was conducted following JBI guidelines. We searched seven online databases, including MEDLINE, Embase, PsycINFO, Cochrane Library, CINAHL, Social Science Collection, and Web of Science, up to February 2024. Data were synthesised using a socio-ecological model, and four young migrants living with sickle cell disease in the UK contributed to the review through a Patient and Public Involvement Advisory Group.
RESULTS: Of the 58 included papers, most focused on migration to high-income countries, particularly the USA, and used institutional records or case studies. Few studies provided detailed information about migration status or reason for migration, often using proxies like parental country of birth or language spoken. The socio-ecological model revealed disparities in health status, treatment access, and health outcomes for migrant CYP with CIs. Key challenges were language, communication, costs, bureaucracy, family dynamics, coordination issues, resource constraints, and socio-political influences. Significant gaps included a lack of intersectional analyses (e.g. accounting for 'race' and citizenship) and limited qualitative research capturing the lived experiences of migrant CYP with CIs.
CONCLUSIONS: Migrant CYP with CIs face significant health disparities shaped by individual, social, and systemic factors. Addressing these challenges requires intersectional and qualitative research, alongside collaboration with policymakers, practitioners, and communities, to inform more equitable healthcare policies and practices.
Disciplines :
Sociology & social sciences
Author, co-author :
Poku, Brenda Agyeiwaa; School of Sociology and Social Policy, University of Nottingham, University Park, Nottingham, NG7 2RD, UK. brenda.poku@nottingham.ac.uk
HUNT, Lucy ; University of Luxembourg > Faculty of Humanities, Education and Social Sciences (FHSE) > Department of Education and Social Work (DESW) > Teaching and Learning ; School of Sociology and Social Policy, University of Nottingham, University Park, Nottingham, NG7 2RD, UK
Pilnick, Alison; School of Nursing and Public Health, Manchester Metropolitan University, Manchester, UK
Atkin, Karl Michael; Department of Sociology, University of York, York, UK
Evans, Catrin; The Nottingham Centre for Evidence-Based Healthcare, School of Health Sciences, University of Nottingham, Nottingham, UK
Pulsford, Emily; School of Medicine and Population Health, University of Sheffield, Sheffield, UK
Kirk, Susan; Division of Nursing, Midwifery and Social Work, School of Health Sciences, University of Manchester, Manchester, UK
External co-authors :
yes
Language :
English
Title :
Children and young people at the intersection of chronic illness and migration: a scoping review
Department of Health England and Wales. Long-term conditions compendium of information (3rd ed.). 2012. Available from: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/21652/dh_134486.pdf. Accessed 7 June 2023.
S.M. Alharbi A.A. Alluheybi A.A. AlHarbi L.K. Alkaabi K.M. Alshahrani K.H. Farrash et al. Common chronic conditions in pediatric primary care Int J Community Med Public Health 9 10 3911 6 10.18203/2394-6040.ijcmph20222379
B.E. Compas S.S. Jaser M.J. Dunn E.M. Rodriguez Coping with chronic illness in childhood and adolescence Annu Rev Clin Psychol 8 1 455 480 10.1146/annurev-clinpsy-032511-143108 22224836
N. Silva M. Pereira C. Otto U. Ravens-Sieberer M.C. Canavarro M. Bullinger Do 8–18 year-old children/adolescents with chronic physical health conditions have worse health-related quality of life than their healthy peers? A meta-analysis of studies using the KIDSCREEN questionnaires Qual Life Res 28 1725 1750 10.1007/s11136-016-02189-7 31055778
G.R. Maslow A.A. Haydon C.A. Ford et al. Young adult outcomes of children growing up with chronic illness. An analysis of the national longitudinal study of adolescent health Arch Pediatr Adolesc Med 165 3 256 261 10.1001/archpediatrcis.2010.287 21383274 3383314
K. Atkin W.I. Ahmad Living a ‘normal’ life: young people coping with thalassaemia major or sickle cell disorder Soc Sci Med 53 5 615 626 1:STN:280:DC%2BD38%2Fis1yruw%3D%3D 11478541
A.M. Brady J. Deighton S. Stansfeld Chronic illness in childhood and early adolescence: a longitudinal exploration of co-occurring mental illness Dev Psychopathol 33 885 898 32362290
S. Spuur C.A. Danford K.J. Roberts D. Sheppard-LeMoine F.M. Silva-Rodrigues M.D.R. Nunes et al. Fathers’ experiences of caring for a child with a chronic illness: a systematic review Children 10 10.3390/children10020197 197
L.F. Monaghan J. Gabe Chronic illness as biographical contingency? Young people’s experiences of asthma Sociol Health Illn 37 8 1236 1253 10.1111/1467-9566.12301 26140434
B. Saunders ‘It seems like you’re going around in circle’: recurrent biographical disruption constructed through the past, present and anticipated future in the narratives of young adults with inflammatory bowel disease Sociol Health Illn 33 4 726 740 10.1111/1467-9566.12561
S. Kirk D. Hinton “I’m not what I used to be”: a qualitative study exploring how young people experience being diagnosed with a chronic illness Child Care Health Dev 45 216 226 10.1111/cch.12638 30652354
B.A. Poku A. Pilnick Biographical accounts of the impact of fatigue in young people with sickle cell disease Sociol Health Illn 44 1027 1046 10.1111/1467-9566.13477 35488415 9545386
H. Castaneda S.M. Holmes D.S. Madrigal M.D. Young N. Beyeler J. Quesada Immigration as a social determinant of health Annu Rev Public Health 18 36 375 392 10.1146/annurev-publhealth-032013-182419
United Nations. Transforming our world: the 2030 agenda for sustainable development. United Nations (UN); 2015. Available from: https://sustainabledevelopment.un.org/post2015/transformingourworld. Accessed 5 Jan 2023.
S. Dias A. Gama H. Cargaleiro M.O. Martins Health workers’ attitudes towards immigrant patients: a cross-sectional survey in primary health care services Hum Resour Health 10 14 20 22776316 3422994
A. Hjern Migration and public health in Sweden Scand J Public Health 40 9 255 267 10.1177/1403494812459610 23238411
Jayaweera H. Health and access to health care of migrants in the UK. Race Equality Foundation; 2010. Available from: https://raceequalityfoundation.org.uk/wp-content/uploads/2018/03/health-brief19.pdf. Accessed 8 Apr 2023.
Jayaweera H. Health of migrants in the UK: what do we know? The Migration Observatory, University of Oxford; 2014. Available from: http://www.migrationobservatory.ox.ac.uk/wp-content/uploads/2016/04/Briefing-Health_of_Migrants_in_the_UK.pdf. Accessed 8 Apr 2023.
G. Spencer S.M. Thompson Health experiences of children and young people who migrate – opportunities for health education Health Edu J 78 1 96 107
M. Lau X. Chen Y. Ren Increased risk of cigarette smoking among immigrant children and girls in Hong Kong: an emerging public health issue J Community Health 37 1 144 152 10.1007/s10900-011-9428-9 21674257
Y.M. Lee O.J. Shin M.H. Lim The psychological problems of North Korean adolescent refugees living in South Korea Psychiatry Investig 9 3 217 222 10.4306/pi.2012.9.3.217 22993519 3440469
D. Mellor A. Renzaho B. Swinburn J. Green B. Richardson Aspects of parenting and family functioning associated with obesity in adolescent refugees and migrants from African backgrounds living in Australia Aust N Z J Public Health 36 4 317 324 10.1111/j.1753-6405.2012.00894.x
M. Posselt N. Procter C. de Crespigny C. Galletly Merging perspectives: obstacles to recovery for youth from refugee backgrounds with comorbidity Transcult Psychiatry 23 3 293 299 10.1177/1039856215584512
D. Sime ‘I think that Polish doctors are better’: newly arrived migrant children and their parents’ experiences and views of health services in Scotland Health Place 30 86 93 10.1016/healthplace.2014.08.006 25237717
B. Rechel P. Mladovsky D. Ingleby J.P. Mackenbach M. McKee Migration and health in an increasingly diverse Europe Lancet 381 1235 1245 10.1016/S0140-6736(12)62086-8 23541058
K.A. Ehntholt W. Yule Practitioner review: assessment and treatment of refugee children and adolescents who have experienced war-related trauma J Child Psychol Psychiatry 47 1197 1210 10.1111/j.1469-7610.2006.01638.x 17176375
World Health Organisation. Refugee and migrant health: key facts. 2024. Available at https://www.who.int/news-room/fact-sheets/detail/refugee-and-migrant-health. Accessed 15 Dec 2024.
T. Zittoun Transitions. Development through symbolic resources Greenwich InfoAge
H.J.M. Hermans The dialogical self: towards a theory of personal and cultural positioning Cult Psychol 7 3 243 281 10.1177/1354067X0173001
B. Berg C. Wendelborg J. Tøssebro Double vulnerable–minority families of children with disabilities Growing up with disabilities. Family life and transitions Oslo Gyldendal Akademisk 180 97
S. Söderström Lost in translation? Communication challenges in minority families and healthcare workers interactions Disabil Soc 29 807 820 10.1080/09687599.2013.848783
C.D. Di Cosmo T.L. Milfont E. Robinson S.J. Denny C. Ward S. Crengle et al. Immigrant status and acculturation influence substance use among New Zealand youth Aust N Z J Public Health 35 5 434 441 10.1111/j.175-6405.2011.00758.x 21973250
G. Prado S. Huang S.J. Schwartz M. Maldonado-Molina F.C. Bandiera M. de la Rosa et al. What accounts for differences in substance use among U.S.-born and immigrant Hispanic adolescents? Results from a longitudinal prospective cohort study J Adolesc Health 45 2 118 25 10.1016/jadohealth.2008.12.011 19628137 3466101
H.B. Weishaar ‘You have to be flexible’ – coping among Polish migrant workers in Scotland Health Place 16 820 827 10.1016/j.healthplace.2010.04.007 20493757
I. Correa-Velez S. Gifford C. McMichael The persistence of predictors of wellbeing among youth eight years after resettlement in Melbourne, Australia Soc Sci Med 142 163 168 10.1016/j.socscimed.2015.08.017 26310592
M. Mehdiyar R. Andersson K. Hjelm L. Povlsen HIV-positive migrants’ encounters with Swedish health care system Glob Health Action 9 10.3402/gha.v9.31753 27900931 31753
S.T. Savas M. Knipper D. Duclos E. Sharma M.I. Ugarte-Gurrutxaga K. Blanchet Migration-sensitive healthcare in Europe: advancing health equity through accessibility, acceptability, quality and trust Lancet Reg Health Eur 41 10.1016/j.lanepe.2023.100805 39444446 11496971 100805
Peters M, Godfrey C, McInerney P, Munn Z, Tricco AC, Khalil H. JBI reviewer’s manual, Chapter 11: scoping reviews: the Joanna Briggs Institute. 2020. Available from: https://doi.org/10.46658/JBIMES-20-12. Accessed 17 Jul 2022.
C. Garritty A.C. Tricco M. Smith D. Pollock C. Kamel V.J. King Rapid reviews methods series: involving patient and public partners, healthcare providers and policymakers as knowledge users BMJ Evid Based Med 29 1 55 61 10.1136/bmjebm-2022-112070 37076265
Poku BA, Pilnick A, Atkin K, Evans C, Kirk S. Migrant children and young people with chronic illnesses: a scoping review protocol. Open Science Framework (registries); 2023. Available from: https://osf.io/hqt2c/. Accessed 30 Jul 2024.
A.C. Tricco E. Lillie W. Zarin K.K. O’Brien H. Colquhoun D. Levac et al. PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation Ann Intern Med 169 7 467 473 10.7326/M18-0850
World Health Organisation. Noncommunicable diseases. World Health Organisation (WHO); 2023. Available from: https://www.who.int/news-room/fact-sheets/detail/noncommunicable-diseases. Accessed 14 Aug 2024.
C. Evans B. Poku R. Pearce J. Eldridge P. Hendrick R. Knaggs et al. Characterising the evidence base for advanced clinical practice in the UK: a scoping review protocol BMJ Open. 5 5 10.1136/bmjopen-2019-036192
O. Dewidar B.A. Kawala A. Antequera A.C. Tricco D. Tovey S. Straus et al. Methodological guidance for incorporating equity when forming rapid policy and guideline development J Clin Epidemiol 2 43 10.1016/j.jclinepi.2022.07.007
Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017;358. https://doi.org/10.1136/bmj.j3453.
Popay JH, Roberts A, Sowden M, Petticrew M, Arai L, Rodgers M, et al. Guidance on the conduct of narrative synthesis in systematic reviews: a product from the ESRC Methods Programme. 2006. Available from: https://www.researchgate.net/publication/23866356. Accessed 15 Mar 2024.
Hunt L, Aleghfeli YK, McIntyre J, Stone C. Refugees’ gendered experiences of education in Europe since 2015: a scoping review. Rev Educ. 2023;11. https://doi.org/10.1002/rev3.3441.
U. Bronfenbrenner Toward an experimental ecology of human development Am Psychol 32 513
Y.K. Aleghfeli L. Hunt Education of unaccompanied refugee minors in high-income countries: risk and resilience factors Educ Res Rev 35 10.1016/j.edurev.2022.100433 100433
D. Silove The psychosocial effects of torture, mass human rights violations, and refugee trauma: toward an integrated conceptual framework J Nerv Ment Dis 187 4 200 207 1:STN:280:DyaK1M3js1Onsw%3D%3D 10.1097/00005053-199904000-00002 10221552
C.W.S. Wong R.D. Schweitzer Individual, premigration and postsettlement factors, and academic achievement in adolescents from refugee backgrounds: a systematic review and model Transcult Psychiatry 54 5–6 756 782 10.1177/1363461517737015 29115909
S. Arakelyan A. Ager A multilevel bioecological analysis of factors influencing the mental health and psychosocial well-being of refugee children J Child Psychol Psychiatry 62 5 484 509 10.1111/jcpp.13355 33277944
Y. Paat Working with immigrant children and their families: an application of Bronfenbrenner’s ecological systems theory J Hum Behav Soc Environ 23 8 954 966 10.1080/10911359.2013.800007
T. Abel L. Tadesse A. Frahsa S. Sakarya Integrating patient-reported experience (PRE) in a multistage approach to study access to health services for women with chronic illness and migration experience Health Expect 26 1 237 244 10.1111/hex.13649 36416363
M. Abbe C. Simon A. Angiolillo K. Ruccione E.D. Kodish A survey of language barriers from the perspective of pediatric oncologists, interpreters, and parents Pediatr Blood Cancer 47 6 819 824 10.1002/pbc.20841 16615062
I. Al-Ammouri A. Daher L. Tutunji H. Qutishat A. Hijazi H. Al-Shaikh et al. Outcome of heart disease in Syrian refugee children: insights into crisis Pediatr Cardiol 41 877 884 10.1007/s00246-020-02325-y 32377891
I. Al-Ammouri F. Ayoub Heart disease in Syrian refugee children: experience at Jordan University Hospital Ann Glob Health 82 2 300 306 10.1016/j.aogh.2015.02.517 27372533
Alarjeh G, Boufkhed S, Alrjoub W, Guo P, Yurdusen S, Ahmed F, et al. Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a qualitative study. Front Oncol. 2023;13. https://doi.org/10.3389/fonc.2023.1118992.
Altun A, Brown H, Sturgiss E, Russell G. Experiences of Assyrian refugee women seeking care for chronic pain: a qualitative study. Int J Equity Health. 2023;22(83). https://doi.org/10.1186/s12939-023-01891-w.
A. Balat B.D. Kilic B. Aksu M. Akbalik Kara M. Buyukcelik A. Agbas et al. Kidney disease profile and encountered problems during follow-up in Syrian refugee children: a multicenter retrospective study Pediatr Nephrol 37 393 402 10.1007/s00467-021-05046-3 34331573
A.A. Bruce A.D. Witol H. Greenslade M. Plaha M.A. Venner How do new immigrant families (African continent) with a child with sickle cell disease (SCD) experience the Western medical system? Blood 128 22 10.1182/blood.V128.22.3529.3529 3529
L. Cacciani C. Canova G. Barbieri T.D. Zuanna C. Marino B. Pacelli et al. Potentially avoidable hospitalization for asthma in children and adolescents by migrant status: results from the Italian Network for Longitudinal Metropolitan Studies BMC Public Health 20 1858 10.1186/s12889-020-09930-9 33276754 7716466
L. Cantarero-Arévalo B.E. Holstein A. Andersen S. Kaae M. Nørredam E.H. Hansen Inequalities in asthma treatment among children by country of birth and ancestry: a nationwide study in Denmark J Epidemiol Community Health 67 11 912 7 23814271 http://www.jstor.org/stable/43281641
E. Chappell M.K. Vasconcelos R.L. Goodall L. Galli T. Goetghebuer A. Noguera-Julian et al. Children living with HIV in Europe: do migrants have worse treatment outcomes? HIV Med 23 186 196 10.1111/hiv.13177 34596323 9293243
A.-C. Dalheim-Englund I. Rydström “I have to turn myself inside out”: caring for immigrant families of children with asthma Clin Nurs Res 21 2 224 242 10.1177/1054773812438915 22473272
H.B. Demeke A.S. Johnson H. Zhu Z. Gant W.A. Duffus H.D. Dean HIV infection-related care outcomes among U.S.-born and non-U.S.-born blacks with diagnosed HIV in 40 U.S. areas: the national HIV surveillance system Int J Environ Res Public Health 15 11 2404 10.3390/ijerph15112404
N. Desai C.A. Jenkins B. Zanoni A. Nmoh N. Patel B.E. Shepherd et al. High rates of viral suppression and care retention among youth born outside of the United States with perinatally acquired HIV Pediatr Infect Dis J 41 12 970 975 10.1097/INF.0000000000003698 36102695 9669206
E. Garcia K. Wijesekera P. Lester A family-centered preventive intervention within pediatric oncology: adapting the FOCUS intervention for Latino youth and their families J Educ Psychol Consult 27 3 393 410 10.1080/10474412.2017.1323221
Gaudichon J, Toscani S, Cohen-Gogo S, Saulpic J, Surun A, Sakiroglu O, et al. Care management for foreign children, adolescents, young adults with cancer, and their families. Pediatr Blood Cancer. 2017;64(6). https://doi.org/10.1002/pbc.26336.
Gianvecchio C, Cabas J, Perez D, Semidey K. Challenges in the management of type 1 diabetes mellitus (T1DM) in a pediatric patient due to social determinants of health: a case report. Cureus. 2023;15(5). https://doi.org/10.7759/cureus.39306.
M.R. Golomb S. Hune D.L. MacGregor G.A. deVeber Alternative therapy use by Chinese-Canadian children with stroke and cerebrovascular disease J Child Neurol 18 10 714 717 10.1177/08830738030180100201 14649555
J. Granhagen Jungner E. Tiselius K. Lützén K. Blomgren P. Pergert Creating a meeting point of understanding: interpreters’ experiences in Swedish childhood cancer care J Pediatr Oncol Nurs 33 2 137 145 10.1177/1043454215600148 26458415
A. Hjern B. Haglund S. Bremberg G. Ringbäck-Weitoft Social adversity, migration and hospital admissions for childhood asthma in Sweden Acta Paediatr 88 1107 1112 1:STN:280:DC%2BD3c%2FivFWrug%3D%3D 10.1111/j.1651-2227.1999.tb00997.x 10565458
J.C. Jackson N.C. Ahrenholz H. Burkhalter E. Dawson Hahn A. Ibrahim S. Pak Gorstein et al. Enhanced transitions of care for medically complex refugees J Immigr Minor Health 23 1359 1363 10.1007/s10903-021-01200-z 33864565
A. Koca Yozgat D. Özyörük S. Emir A. Demir A. Yazal Erdem C.B. Aker et al. Evaluation of leukemia and solid tumors in refugee children in Turkey: a tertiary center experience J Pediatr Acad 4 2 62 66 10.4274/jpea.2023.209
A. Kyrönlahti L. Madanat-Harjuoja J. Pitkäniemi M. Rantanen N. Malila M. Taskinen Childhood cancer mortality and survival in immigrants: a population-based registry study in Finland Int J Cancer 146 10 2746 2755 1:CAS:528:DC%2BC1MXhs1aqsLnL 10.1002/ijc.32625 31407318
L. Low R.S. Purvis T.V. Cunningham A. Chughati R. Garner P.A. McElfish Ethical dilemmas encountered by health care providers caring for Marshallese migrants in Northwest Arkansas Narrat Inq Bioeth 9 1 53 62 10.1353/nib.2019.0018 31031291
T. Marukutira D. Yin L. Cressman R. Kariuki B. Malone T. Spelman et al. Clinical outcomes of a cohort of migrants and citizens living with human immunodeficiency virus in Botswana: implications for Joint United Nation Program on HIV and AIDS 90–90–90 targets Medicine. 98 23 1:CAS:528:DC%2BC1MXhtlegsr%2FF 10.1097/MD.0000000000015994 31169739 6571245 e15994
M.E. McEnhill J.L. Brennan E. Winnicki M.M. Lee M. Tavakol A.M. Posselt et al. Effect of immigration status on outcomes in pediatric kidney transplant recipients Am J Transplant 16 6 1827 1833 1:STN:280:DC%2BC28rktlentw%3D%3D 10.1111/ajt.13683 26699829
M. Mirza R. Luna B. Mathews R. Hasnain E. Hebert A. Niebauer et al. Barriers to healthcare access among refugees with disabilities and chronic health conditions resettled in the US Midwest J Immigr Minor Health 16 733 742 10.1007/s10903-013-9906-5 24052476
H. Mostafa M. Rashed M. Azzo A. Tabbakh O. El Sedawi H. Bou Hussein et al. Congenital heart disease in Syrian refugee children: the experience at a tertiary care center in a developing country Pediatr Cardiol 42 1010 1017 10.1007/s00246-021-02574-5 33738510
M.L. Nacif-Gomera R. Lorenzo-González M. Hernández A. Pérez-Martínez AMOR II: an effort to eradicate psychosocial barriers induced by immigration phenomenon in children with cancer J Pediatr Hematol Oncol 35 2 118 123 10.1097/MPH.0b013e3182580c0c 22858565
R. Odeh L. Gharaibeh E.F. Badran F. Bani Hani A. Alassaf Children with type one diabetes who are migrants and refugees suffer from poor metabolic control and frequent acute complications, a study from Jordan, a limited resource country with high migrant/refugee population Diabetes Res Clin Pract 185 1:CAS:528:DC%2BB38XhtlGisL%2FP 10.1016/j.diabres.2022.109807 35247528 109807
P. Pergert Facading in transcultural interactions: examples from pediatric cancer care in Sweden Psychooncology 26 7 1013 1018 10.1002/pon.4274 27565446
P. Pergert S. Ekblad K. Enskär O. Björk Obstacles to transcultural caring relationships: experiences of health care staff in pediatric oncology J Pediatr Oncol Nurs 24 6 314 328 10.1177/1043454207308066 18003591
P. Pergert S. Ekblad K. Enskär O. Björk Bridging obstacles to transcultural caring relationships—tools discovered through interviews with staff in pediatric oncology care Eur J Oncol Nurs 12 1 35 43 10.1016/j.ejon.2007.07.006 18218338
Philpot SP, Aung E, Templeton DJ, Stackpool G, Varma R, Power C, et al. Experiences of recently HIV-diagnosed gay and bisexual migrants in Australia: implications for sexual health programmes and health promotion. Health Soc Care Community. 2022;30(6). https://doi.org/10.1111/hsc.14011.
N. Prinz K. Konrad C. Brack E. Hahn A. Herbst A. Icks et al. Diabetes care in pediatric refugees from Africa or Middle East: experiences from Germany and Austria based on real-world data from the DPV registry Eur J Endocrinol 181 1 31 38 1:CAS:528:DC%2BC1MXit1WnurbP 10.1530/EJE-18-0898 31075760
M.F. Razavi L. Falk Å. Björn S. Wilhelmsson Experiences of the Swedish healthcare system: an interview study with refugees in need of long-term health care Scand J Public Health 39 3 319 325 10.1177/1403494811399655 21398334
R. Rihani S. Jeha M. Nababteh C. Rodriguez-Galindo A. Mansour I. Sultan The burden and scope of childhood cancer in displaced patients in Jordan: The King Hussein Cancer Center and Foundation experience Front Oncol 13 10.3389/fonc.2023.1112788 37035175 10080160 1112788
R. Saab S. Jeha H. Khalifeh L. Zahreddine L. Bayram Z. Merabi et al. Displaced children with cancer in Lebanon: a sustained response to an unprecedented crisis Cancer 124 7 1464 1472 10.1002/cncr.31273 29489012
Spencer G, Thompson J. Enhancing nursing practice for young migrants with long-term conditions. Nurs Times; 2022. Available from: https://www.nursingtimes.net/roles/children-nurses/enhancing-nursing-practice-for-young-migrants-with-long-term-conditions-13-06-2022/. Accessed 15 Mar 2024.
I. Sudarsan K. Hoare N. Sheridan J. Roberts Navigating asthma—the immigrant child in a tug-of-war: a constructivist grounded theory J Clin Nurs 32 4009 4023 10.1111/jocn.16521 36065140
J. Suurmond A. Lieveld M. van de Wetering A.Y.N. Schouten-van Meeteren Towards culturally competent paediatric oncology care: a qualitative study from the perspective of care providers Eur J Cancer Care. 26 26 10.1111/ecc.12680
S. Tariq J. Elford C. Chau C. French M. Cortina-Borja A. Brown et al. Loss to follow-up after pregnancy among sub-Saharan Africa-born women living with human immunodeficiency virus in England, Wales and Northern Ireland: results from a large national cohort Sex Transm Dis 43 5 283 289 10.1097/OLQ.0000000000000442 27100763 4841179
F.F. Untalan K. Woodruff M. Liao C. Hardy Stressors associated with Pacific Islands children diagnosed with cancer and severe blood disorders J Pediatr Oncol Nurs 21 1 40 50 10.1177/1043454203262002 15058406
E.R. Wolf S. Beste E. Barr J. Wallace E. McFarland M.J. Abzug et al. Health outcomes of international HIV-infected adoptees in the US Pediatr Infect Dis J 35 4 422 427 10.1097/INF.0000000000001020 26629872
B. Yağcı-Küpeli A. Özka Syrian and Turkish children with cancer: a comparison on survival and associated factors Pediatr Hematol Oncol 37 8 707 716 10.1080/08880018.2020.1795328 32705959
A. Yazal Erdem F. Demir Yenigürbüz E. Pekpak B. Akıncı E. Aktekin C. Bayram et al. Refugee children with beta-thalassemia in Turkey: overview of demographic, socioeconomic and medical characteristics Pediatr Blood Cancer. 66 66 1:CAS:528:DC%2BC1MXlvFaqt7o%3D 10.1002/pbc.27636
A.İ. Yılmaz S. Pekcan T.Ş. Eyüboğlu M. Hangül H. Arslan A. Ayzıt Kılınç et al. Comparison of refugee patients with cystic fibrosis and their counterpart children from Turkey during the war Eur J Pediatr 183 1831 1838 1:CAS:528:DC%2BB2cXit1Gku7Y%3D 10.1007/s00431-024-05431-8 38265526 11001702
J. Young G. Flores S. Berman Providing life-saving health care to undocumented children: controversies and ethical issues Pediatrics 114 5 1316 1320 10.1542/peds.2004-1231 15520114
Auzanneau M. Socioeconomic barriers and disparities to diabetes technology: experience in Germany. Adv Technol Treat Diabetes. 2022;24(S1). https://doi.org/10.1089/dia.2022.2525.abstracts.
L. De Franceschi C. Lux F. Piel B. Gianesin F. Bonetti M. Casale et al. Access to emergency department and identification of subjects with sickle cell disease and other hemoglobinopathies in refugees HemaSphere 2 Suppl 2 306 307 1:CAS:528:DC%2BC1MXhtVCntLbN 10.1182/blood-2018-09-876508
R. Kebudi I. Bayram B. Yagcı Kupeli S. Kupeli G. Sezgin E. Pekpak et al. Cancer in refugee children in Turkey Pediatr Blood Cancer. 63 63(S5–S6) 10.1002/pbc.26233
M. Kohns R. Goodall L. Galli A. Judd T. Goetghebuer A. Noguera-Julian et al. Are HIV+ migrant children in Europe at increased risk of poor outcomes on ART? Top Antivir Med 26 S1 382s https://discovery.ucl.ac.uk/id/eprint/10062955/1/EPPICC%20Migrants%20CROI%202018%20poster%20%281430_Collins_853%29.pdf. Accessed 15 Mar 2024
S. Morris T. Brooks Administering medicines safely at home: using an evidence-based approach to help a family with complex health needs Arch Dis Child. 107 107 10.1136/archdischild-2022-NPPG.44
Y. Oymak D. Ince B. Demirag B. Ali Y. Yaman G. Ozek et al. Cancer in Syrian refugee children Pediatr Blood Cancer. 62 62(S4)–5 10.1002/pbc.25715
R. Roman M. Pichott A. Avila Y. Letelier J. Linares X. Gaete et al. Improvement in metabolic control in migrant children with type 1 diabetes moving from Central America to Chile Pediatr Diabetes 20 41 231 10.1111/pedi.12924
E. Tsaroucha A. Nikolakopoulou G. Noutsos A. Kavvada A. Andrianopoulos A. Foteinakopoulos et al. The impact of language as a barrier to effective asthma control in young immigrants World Allergy Organ J. 13 8 10.1016/j.waojou.2020.100200 100200
Chotiga P, Crozier K, Pfeil M. Making decisions in pregnancy about HIV testing and treatment: the experience of Burmese migrant women in Northern Thailand. In: Liamputtong P, editor. Women, Motherhood and Living with HIV/AIDS: A Cross-Cultural Perspective. Cham: Springer; 2013. p. 63–75. https://doi.org/10.1007/978-94-007-5887-2_4.
Muchena S. Stigmatised transitions into adulthood: understanding the experiences of Black African youth with prenatally acquired HIV in the UK. PhD thesis, Lancaster University. https://doi.org/10.17635/lancaster/thesis/1300.
C. Kelly L. Dansereau J. Sebring K. Aubrecht M. Fitzgerald Y. Lee et al. Intersectionality, health equity, and EDI: what’s the difference for health researchers? Int J Equity Health 21 182 10.1186/s12939-022-01795-1 36536361 9764702
Salami B, Olukotun M, Vastani M, Amodu O, Obegu PO, Plaquin J, et al. Immigrant child health in Canada: a scoping review. BMJ Glob Health. 2021;7(4). https://doi.org/10.1136/bmjgh-2021-008189.
