Article (Scientific journals)
A qualitative interview study on quality of life and ageing experiences of autistic adults
VINER, Hannah Elizabeth; Yuill, Nicola; COSTA, Andreia et al.
2024In Communications Psychology
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Abstract :
[en] Quality of life across the lifespan has been established as a key research priority by the autism community. Still relatively little is known about the quality of life and ageing experiences of older autistic adults. Most studies to date have used generic measures of quality of life which may not accurately capture the experiences of autistic people. The aim of this qualitative study was to understand how autistic adults experience and define quality of life as they age. We conducted semi-structured interviews with 16 autistic adults aged 40+ from the UK and Luxembourg. Using reflexive thematic analysis, we identified five themes which contribute to quality of life: (1) Diagnosis is pivotal, (2) Connection with others, (3) Autonomy over space and time, (4) ‘Paperwork of life’, (5) Vulnerability. This study identifies autism-specific aspects of quality of life and highlights ways in which ageing and autism intersect and impact quality of life.
Disciplines :
Social & behavioral sciences, psychology: Multidisciplinary, general & others
Author, co-author :
VINER, Hannah Elizabeth ;  University of Luxembourg > Faculty of Humanities, Education and Social Sciences (FHSE) > Department of Behavioural and Cognitive Sciences (DBCS) > Lifespan Development, Family and Culture
Yuill, Nicola;  University of Sussex, UK
COSTA, Andreia  ;  University of Luxembourg > Faculty of Humanities, Education and Social Sciences (FHSE) > Department of Behavioural and Cognitive Sciences (DBCS) > Health and Behaviour
Radford, Holly;  University of Portsmouth [GB]
KORNADT, Anna  ;  University of Luxembourg > Faculty of Humanities, Education and Social Sciences (FHSE) > Department of Behavioural and Cognitive Sciences (DBCS) > Lifespan Development, Family and Culture
External co-authors :
yes
Language :
English
Title :
A qualitative interview study on quality of life and ageing experiences of autistic adults
Publication date :
2024
Journal title :
Communications Psychology
eISSN :
2731-9121
Publisher :
Nature Portfolio, London, United Kingdom
Peer reviewed :
Peer Reviewed verified by ORBi
FnR Project :
FNR17027176 - Autistic Ageing, 2022 (01/10/2022-30/09/2026) - Hannah Elizabeth Viner
Available on ORBilu :
since 25 October 2024

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