Reference : Impact of COVID-19 Pandemic on (Health) Care Situation of People with Parkinson’s Dis...
Scientific journals : Article
Social & behavioral sciences, psychology : Neurosciences & behavior
Systems Biomedicine
Impact of COVID-19 Pandemic on (Health) Care Situation of People with Parkinson’s Disease in Germany (Care4PD)
Fründt, Odette [Klinikum Ernst von Bergmann > Department of Neurology]
Hanff, Anne-Marie mailto [University of Luxembourg > Luxembourg Centre for Systems Biomedicine (LCSB) >]
Mai, Tobias [> >]
Kirchner, Christiane [Klinikum Ernst von Bergmann > Department of Neurology]
Bouzanne des Mazery, Emma [> >]
Amouzandeh, Ali [> >]
Buhmann, Carsten [> >]
Krüger, Rejko mailto [University of Luxembourg > Luxembourg Centre for Systems Biomedicine (LCSB) > Translational Neuroscience]
Südmeyer, Martin [> >]
Brain Sciences
1 62
Yes (verified by ORBilu)
[en] COVID-19 ; PD ; care people
[en] The Care4PD study examined the impact of the COVID-19 pandemic on the care situation of people (PwP) with Parkinson’s disease in Germany. A comprehensive, nationwide, anonymous questionnaire for PwP was distributed by the members’ journal of the German Parkinson’s Disease Association and in several PD specialized in- and outpatient institutions. PwP subjectively evaluated their general care situation and individual impairments during the pandemic. We analyzed 1269 eligible out of 1437 returned questionnaires (88.3%) and compared PwP with (p-LTC) and without (np-LTC) professional long-term care. Both groups rated the general pandemic-related consequences as being rather mild to moderate (e.g., worsening of symptom or concerns). However, familial/social contact restrictions were indicated as most compromising, whereas access to outpatient professional health care providers was less affected. PwP with professional LTC reported more impairment than those without. COVID-19 vaccination rates and acceptance were generally high (p-LTC: 64.3%, np-LTC: 52.3%) at the time of the study, but realization of sanitary measures—especially wearing masks as a patient during care sessions—still needs to be improved. Technical options for telemedicine were principally available but only rarely used. Altogether, during the COVID-19 pandemic, PwP in Germany seemed to have a relatively stable health care access, at least in outpatient settings, while mainly social isolation compromised them. The p-LTC group was more impaired in everyday live compared with the np-LTC group.
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