Reference : Psychological wellbeing of parents of very young children with type 1 diabetes – base...
Scientific journals : Article
Human health sciences : Endocrinology, metabolism & nutrition
http://hdl.handle.net/10993/47811
Psychological wellbeing of parents of very young children with type 1 diabetes – baseline assessment
English
De Beaufort, Carine [Centre Hospitalier de Luxembourg CHL > > > ; Free University of Brussels > Faculty of Medicine]
Pit-Ten Cate, Ineke mailto [University of Luxembourg > Faculty of Humanities, Education and Social Sciences (FHSE) > LUCET >]
Schierloh, Ulrike [Centre Hospitalier de Luxembourg CHL]
Cohen, Nathan [Jaeb Center for Health Research]
Boughton, Charlotte [University of Cambridge > MRC Metabolic Diseases Unit]
Tauschmann, Martin [Medical University Vienna > University Clinic for Pediatrics and Adolescent Medicine]
Allen, Janet M. [University of Cambridge > MRC Metabolic Diseases Unit > > ; University of Cambridge > Department of Pediatrics]
Nagl, Katrin [Medical University Vienna > University Clinic for Pediatrics and Adolescent Medicine]
Fritsch, Maria [Medical University Vienna > University Clinic for Pediatrics and Adolescent Medicine > > ; Medical University of Graz > Department of Pediatrics and Adolescent Medicine]
Yong, James [Leeds Children´s Hospital]
Metcalfe, Emily [Leeds Children´s Hospital]
Schaeffer, Dominique [Centre Hospitalier de Luxembourg CHL]
Fichelle, Muriel [Centre Hospitalier de Luxembourg CHL]
Thiele, Alena G. [University Clinic Leipzig > Division of Pediatric Diabetology]
Abt, Daniela [Innsbruck Medical University > Department of Pediatrics]
Faninger, Kerstin [Medical University Graz > Department of Pediatrics and Adolescent Medicine]
Mader, Julia K. [Medical University Graz > Department of Internal Medicine > Division of Endocrinology and Diabetology]
Slegtenhorst, Sonja [Cambridge University Hospitals > Addenbrooke´s Hospital]
Ashcroft, Nicole [University of Cambridge > MRC Metabolic Diseases Unit]
Wilinska, Malgorzata E. [University of Cambridge > MRC Metabolic Diseases Unit]
Sibayan, Judy [Jaeb Center for Health Research]
Kollman, Craig [Jaeb Center for Health Research]
Hofer, Sabine E. [Innsbruck Medical University > Department of Pediatrics]
Frohlich-Reiterer, Elke [Medical University Graz > Department of Pediatrics and Adolescent Medicine]
Kapellen, Thomas [University Hospital Leipzig > Department of Pediatrics]
Acerini, Carlo [Cambridge University Hospitals > Addenbrooke´s Hospital]
Campbell, Fiona [Leeds Children´s Hospital]
Rami-Merhar, Birgit [Medical University Vienna > University Clinic for Pediatrics and Adolescent Medicine]
Hovorka, Roman [University of Cambridge > Department of Pediatrics > > ; University of Cambridge > MRC Metabolic Diseases Unit]
12-Aug-2021
Frontiers in Endocrinology
Frontiers Media S.A.
12
721028
Yes (verified by ORBilu)
International
1664-2392
[en] Hypoglycemia fear ; Parental well-being ; Very young children ; Type 1 Diabetes ; child behavior ; sleepiness
[en] Background: Type 1 diabetes in young children is a heavy parental burden. As part of pilot phase of the KIDSAP01 study, we conducted a baseline assessment in parents to study the association between hypoglycemia fear, parental wellbeing and child behavior.
Methods: All parents were invited to fill in baseline questionnaires: hypoglycemia fear survey (HFS), WHO-5, Epworth Sleepiness Scale and Strength and Difficulties Questionnaire (SDQ).
Results: 24 children (median age: 5-year, range 1-7 years, 63% male, mean diabetes duration: 3 ± 1.7 years) participated. 23/24 parents filled out the questionnaires. We found a higher score for the hypoglycemia fear behavior 33.9 ± 5.6 compared to hypoglycemia worry 34.6 ± 12.2. Median WHO-5 score was 16 (8 - 22) with poor well-being in two parents. Median daytime sleepiness score was high in five parents (>10). For six children a high total behavioral difficulty score (>16) was reported. Pro social behavior score was lower than normal in six children (<6). Parental well-being was negatively associated with HFS total (r = - 0.50, p <.05) and subscale scores (r = - 0.44, p <.05 for HFS-Worry and HFS-Behavior), child behavior (r = - 0.45, p = .05) and positively with child age (r = 0.58, p <.01). HFS, parental well-being nor daytime sleepiness are associated with the HbA1c.
Conclusion: Regular screening of parental well-being, hypoglycemia fear and child behavior should be part of routine care to target early intervention.
Researchers ; Professionals
http://hdl.handle.net/10993/47811
10.3389/fendo.2021.721028
https://www.frontiersin.org/articles/10.3389/fendo.2021.721028/full?&utm_source=Email_to_authors_&utm_medium=Email&utm_content=T1_11.5e1_author&utm_campaign=Email_publication&field=&journalName=Frontiers_in_Endocrinology&id=721028
H2020 ; 731560 - KidsAP - The artificial pancreas in children aged 1 to 7 years with type 1 diabetes

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