| Reference : Perceived rights and stigmatisation of people with Alzheimer’s disease |
| Scientific congresses, symposiums and conference proceedings : Unpublished conference | |||
| Social & behavioral sciences, psychology : Multidisciplinary, general & others | |||
| http://hdl.handle.net/10993/7600 | |||
| Perceived rights and stigmatisation of people with Alzheimer’s disease | |
| English | |
Bourkel, Elisabeth  [University of Luxembourg > Faculty of Language and Literature, Humanities, Arts and Education (FLSHASE) > Integrative Research Unit: Social and Individual Development (INSIDE) >] | |
| Ferring, Dieter [University of Luxembourg > Faculty of Language and Literature, Humanities, Arts and Education (FLSHASE) > Integrative Research Unit: Social and Individual Development (INSIDE) >] | |
| Weber, Germain [Universität Wien > Fakultät für Psychologie > Institut für angewandte Psychologie: Gesundheit, Entwicklung und Förderung] | |
| Oct-2010 | |
| Yes | |
| 20th Alzheimer Europe Conference - Facing dementia together | |
| 30 September - 2 October 2010 | |
| Luxembourg | |
| [en] The estimation of the autonomy and the competencies of a person with Alzheimer’s disease (AD) is a complicated process, which may sometimes rely on socially shared stereotypes of this disease and may thus lead to the stigmatization of people with AD. This becomes especially evident when it comes to rights and responsibilities of persons with AD given that there is no clear-cut definition of these. The aim of the empirical study presented here was to examine perceived rights of people with AD and their relation with indicators of stigmatization. This was analyzed in a sample of laypersons (n=72) and a sample of health professionals working with persons with AD (n=113). In particular, the study questionnaire presented a vignette describing in one version a female and in the other version a male person at an early stage of AD followed by a list of 26 rights which had to be rated with respect to the target person on a 5 point Likert-scale. The list showed a factorial structure differing between five domains of perceived rights, namely “right of privacy and information”, right of autonomous living”, “citizen rights”, “right of self-determination and self-responsibility”, and “decision making by significant others”. Moreover, k=16 emotions towards the target person were analysed as indicators of social distancing. In subsequent steps of analyses, we tested if rights were differently perceived depending on (a) target person’s gender, (b) professional contact with persons with AD and (c) perceived social distancing.
Results showed that the rate of agreement to the five identified domains rights was in general quite high across groups; furthermore, participants expressed a low level of social distancing and high pro-social emotional reactions towards persons with AD. Professionals accorded more rights to people with AD than laypersons, showed less social distancing and less pro-social and unpleasant emotions towards the target person. Social distance was higher towards the male target person who elicited more unpleasant emotional reactions and was rated more dangerous than a woman with AD. Findings are discussed with respect to the necessity of creating and developing a culture concerning the rights to be accorded to persons affected with AD. | |
| http://hdl.handle.net/10993/7600 |
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