Reference : Determinants of Self-Stigma in People with Parkinson's Disease: A Mixed Methods Scopi...
Scientific journals : Article
Social & behavioral sciences, psychology : Neurosciences & behavior
Systems Biomedicine
http://hdl.handle.net/10993/50359
Determinants of Self-Stigma in People with Parkinson's Disease: A Mixed Methods Scoping Review
English
Hanff, Anne-Marie mailto [University of Luxembourg > Luxembourg Centre for Systems Biomedicine (LCSB) > >]
Leist, Anja mailto [University of Luxembourg > Faculty of Humanities, Education and Social Sciences (FHSE) > Department of Social Sciences (DSOC) >]
Fritz, Joëlle mailto [University of Luxembourg > Luxembourg Centre for Systems Biomedicine (LCSB) > >]
Pauly, Claire mailto [University of Luxembourg > Luxembourg Centre for Systems Biomedicine (LCSB) > Translational Neuroscience >]
Krüger, Rejko mailto [University of Luxembourg > Luxembourg Centre for Systems Biomedicine (LCSB) > Translational Neuroscience >]
Halek, Margareta [University Witten/Herdecke > Faculty of Health, School of Nursing]
NCER-PD, consortium []
21-Nov-2021
Journal of Parkinson's Disease
IOS Press
Yes (verified by ORBilu)
International
1877-7171
1877-718X
Netherlands
[en] Parkinson’s disease ; social stigma ; social discrimination
[en] Background: Self-stigma in people with Parkinson's disease (PD) can substantially impact quality of life and possibilities for social participation. An integrative analysis of determinants of self-stigma has been lacking.

Objective: We sought to explore which complementary insights from qualitative and quantitative studies, as well as from expert consultation, could be gained.

Methods: An established mixed methods study design was employed to first conduct a mixed methods scoping review of published qualitative and quantitative literature, and then consult with experts to arrive at an exhaustive list of determinants of self-stigma after a thematic synthesis.

Results: A total of 87 unique determinants of self-stigma were identified. Quantitative studies and expert consultations mainly identified personal determinants of people with self-stigma (e.g., age, anxiety, or apathy). In contrast, qualitative studies identified social situations associated with self-stigma (e.g., joint meals of people with typical PD with others). Notably, self-stigma of people with PD was found to be particularly salient in unfamiliar places, at the working place or in contact with people without PD. Across methods, cognitive impairment, tremor, and abnormal walk and unsteady gait, respectively, were associated with self-stigma.

Conclusion: The mixed method study design yielded complementary insights, but also factors commonly associated with self-stigma across methods. Future prioritization exercises may gain further insights into self-stigma of people with PD. Facilitating social encounters by both addressing needs of affected people and raising knowledge and public awareness may improve quality of life in people with PD
Researchers ; Professionals ; Students ; General public
http://hdl.handle.net/10993/50359
10.3233/JPD-212869
https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd212869
Corrected Proof available
FnR ; FNR11264123 > Rejko Krüger > NCER-PD > Ncer-pd > 01/01/2015 > 30/11/2020 > 2015

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