Transparency; GDPR; Data protection; privacy; privacy by design; information duties; informed consent; privacy policies; research; design patterns; legal design; information design; transparency enhancing technologies
Résumé :
[en] Oftentimes information disclosures describing personal data-gathering research
activities are so poorly designed that participants fail to be informed
and blindly agree to the terms, without grasping the rights they can exercise
and the risks derived from their cooperation. To respond to the challenge,
this article presents a series of operational strategies for transparent
communication in line with legal-ethical requirements. These "transparency-enhancing
design patterns" can be implemented by data controllers/researchers
to maximize the clarity, navigability, and noticeability of the information provided
and ultimately empower data subjects/research subjects to appreciate
and determine the permissible use of their data.
Disciplines :
Ingénierie, informatique & technologie: Multidisciplinaire, généralités & autres Droit, criminologie & sciences politiques: Multidisciplinaire, généralités & autres Sciences sociales & comportementales, psychologie: Multidisciplinaire, généralités & autres Sciences informatiques Arts & sciences humaines: Multidisciplinaire, généralités & autres
Auteur, co-auteur :
ROSSI, Arianna ; University of Luxembourg > Interdisciplinary Centre for Security, Reliability and Trust (SNT) > Computer Science and Communications Research Unit (CSC)
LENZINI, Gabriele ; University of Luxembourg > Interdisciplinary Centre for Security, Reliability and Trust (SNT)
Co-auteurs externes :
no
Langue du document :
Anglais
Titre :
Transparency by Design in Data-Informed Research: a Collection of Information Design Patterns
Date de publication/diffusion :
juillet 2020
Titre du périodique :
Computer Law & Security Review
Maison d'édition :
Elsevier
Titre particulier du numéro :
Legal and Ethical Challenges of Data Processing in the Research Field
Volume/Tome :
37
Fascicule/Saison :
105402
Peer reviewed :
Peer reviewed
Focus Area :
Law / European Law Security, Reliability and Trust