Transparency by Design in Data-Informed Research: a Collection of Information Design Patterns

Oftentimes information disclosures describing personal data-gathering research
activities are so poorly designed that participants fail to be informed
and blindly agree to the terms, without grasping the rights they can exercise
and the risks derived from their cooperation. To respond to the challenge,
this article presents a series of operational strategies for transparent
communication in line with legal-ethical requirements. These "transparency-enhancing
design patterns" can be implemented by data controllers/researchers
to maximize the clarity, navigability, and noticeability of the information provided
and ultimately empower data subjects/research subjects to appreciate
and determine the permissible use of their data.