[en] People usually are aware of the privacy risks of publish-ing photos online, but these risks are less evident when sharing humangenomes. Modern photos and sequenced genomes are both digital rep-resentations of real lives. They contain private information that maycompromise people’s privacy, and still, their highest value is most oftimes achieved only when sharing them with others. In this work, wepresent an analogy between the privacy aspects of sharing photos andsharing genomes, which clarifies the privacy risks in the latter to thegeneral public. Additionally, we illustrate an alternative informed modelto share genomic data according to the privacy-sensitivity level of eachportion. This article is a call to arms for a collaborative work between ge-neticists and security experts to build more effective methods to system-atically protect privacy, whilst promoting the accessibility and sharingof genomes
Research center :
Interdisciplinary Centre for Security, Reliability and Trust (SnT) > Critical and Extreme Security and Dependability Research Group (CritiX)
Disciplines :
Computer science
Author, co-author :
Cogo, Vinicius Vielmo; LaSIGE, Faculdade de Ciencias, Universidade de Lisboa, Portugal
Bessani, Alysson; LaSIGE, Faculdade de Ciencias, Universidade de Lisboa, Portugal
Couto, Francisco M.; LaSIGE, Faculdade de Ciencias, Universidade de Lisboa, Portugal
Gama-Carvalho, Margarida; BioISI, Faculdade de Ciências, Universidade de Lisboa
Fernandes, Maria ; University of Luxembourg > Interdisciplinary Centre for Security, Reliability and Trust (SNT)
Verissimo, Paulo ; University of Luxembourg > Interdisciplinary Centre for Security, Reliability and Trust (SNT)
External co-authors :
yes
Language :
English
Title :
How can photo sharing inspire sharing genomes?
Publication date :
2017
Event name :
11th International Conference on Practical Applications of Computational Biology & Bioinformatics 2017
Event date :
from 21-06-2017 to 23-06-2018
Audience :
International
Main work title :
11th International Conference on Practical Applications of Computational Biology & Bioinformatics 2017
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