Article (Scientific journals)
Harmonize care to optimize outcome in children and adolescents with diabetes mellitus: treatment recommendations in Europe.
De Beaufort, Carine; Vazeou, Andreani; Sumnik, Zdenek et al.
2012In Pediatric Diabetes, 13 Suppl 16, p. 15-9
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Keywords :
Adolescent; Adult; Age of Onset; Calibration; Child; Diabetes Mellitus/epidemiology/therapy; Endocrinology/methods/organization & administration/standards; Europe/epidemiology; Guideline Adherence/statistics & numerical data; Health Planning Guidelines; Humans; International Cooperation; Practice Guidelines as Topic/standards; Reference Standards; Societies, Medical/organization & administration; Standard of Care/organization & administration/standards; Surveys and Questionnaires
Abstract :
[en] OBJECTIVE: Identify and evaluate current treatment recommendations in Europe for the care of children with diabetes in view of the European Union (EU) recommendations for Reference Centers. METHODS: A questionnaire was sent in 2008 to representatives of all EU countries and Norway, all known to be actively involved in pediatric diabetes care. Participants were asked whether specific guidelines were recommended and applied in their countries; when possible, they were invited to forward their national guidelines. As a second step, we evaluated the guideline mostly used in relationship to the recommendations of the EU. RESULTS: Information was obtained from all EU countries (including Scotland and Norway). National guidelines, as available, were forwarded for review. A 15/29 reported to use the International Society for Pediatric and Adolescent Diabetes (ISPAD) Clinical Practice Consensus Guidelines (CPCG), whereas 10 reported using national guidelines. These national guidelines were partly based on and/or compatible with ISPAD guidelines, but in most cases were far less detailed. The size and presentation differed (web based, booklet, page or chapter in adult guidelines). In four countries, no specific guidelines were used. As ISPAD CPCG were used most frequently, its content was evaluated within the EU Centres of Reference recommendations and minor changes were made in agreement with the ISPAD editor. DISCUSSION: Differences between guidelines may influence surveillance and quality of care in pediatric diabetes within Europe. Although a majority of countries is using or at least mentioning the ISPAD CPCG, their implementation as EU standard needs further endorsement. As language difficulties may hamper its implementation on a wider scale, further translation of the ISPAD guidelines should be endorsed to render it accessible to all healthcare professionals. With respect to the content, some changes were then made in agreement with the editors, adjusting them to the European context. For European Reference Centers, some further guidance on research may be included. Once implemented on an EU wide level, benchmarking of carefully defined robust quality of care and quality of life indicators will allow us to improve these guidelines on a regular basis ensuring an evidence-based care for all children with diabetes.
Disciplines :
Human health sciences: Multidisciplinary, general & others
Author, co-author :
De Beaufort, Carine ;  University of Luxembourg > Luxembourg Centre for Systems Biomedicine (LCSB)
Vazeou, Andreani
Sumnik, Zdenek
Cinek, Ondrej
Hanas, Ragnar
Danne, Thomas
Aschemeier, Barbel
Forsander, Gun
External co-authors :
yes
Language :
English
Title :
Harmonize care to optimize outcome in children and adolescents with diabetes mellitus: treatment recommendations in Europe.
Publication date :
2012
Journal title :
Pediatric Diabetes
ISSN :
1399-5448
Publisher :
Blackwell, Oxford, United Kingdom
Volume :
13 Suppl 16
Pages :
15-9
Peer reviewed :
Peer Reviewed verified by ORBi
Name of the research project :
SWEET group
Available on ORBilu :
since 30 April 2016

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