Paper published in a book (Scientific congresses, symposiums and conference proceedings) Survivors, two years post-event, the influence of an unequality of life
BAUMANN, Michèle ; LURBE, Katia ; Leandro, Maria-Engracia
2011 • In Social Relations in Turbulent Times
Peer reviewed
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Keywords :
life satisfaction; survivors; caregivers; Luxembourg; Portugal
Abstract :
[en] Two' years' post)event,' we' described' the' survivors’' life'
satisfaction' (LS)' and'Quality'of' Life' (QoL),' the' LS' and'QoL'of' their'
caregivers,'and'their'socio)demographic'and'health'characteristics.'
We'analysed'survivors’'LS'and'its'associations'with'these'determi)
nants,'from'a'national'(mainly'urban'society)'survey'in'Luxembourg'
(LU)'and'a'Bragança'district'(mainly'rural)' survey' in'the'Northeast'
Portugal'(PT).'
Over' 18' months' stroke' survivors' (≥18' years)' living' at' home' and'
having'given'their'informed'consent'were'contacted.'The'Inspection/
Générale/de/la/Sécurité/Sociale'(LU)'and'the'District'Health'Centre'
(PT)'had'previously'listed'all'confirmed'diagnosis'population.'Survi)
vors' and' their' main' caregivers' were' interviewed' at' home' with'
questionnaires'measuring'LS'(scale'1)10)'and'validated'QoL’'scales:'
survivors’' Newcastle' Quality' of' Life' (Newsqol);' Whoqol)Bref' for'
caregivers.'
Participation'rate'was'26.5%'LU,'38%'PT:'94'LU'(65.5'years)'and'50'
PT' (70.1)' survivors;' 62' LU' (59.3)' and' 46' PT' (60.7)' caregivers.' LU'
survivors'and'caregivers'had'higher'QoL'scores'than'PT'samples.'PT'
survivors' were' more' affected' by' stroke' impacts,' with' significant'
differences' in'Newsqol'mobility,' ‘self)care’' (preparing' food,' shop)
ping,' transport,' getting' washed,' dressed' and' showed),' feelings'
(dependence,' about' oneself,' change' acceptance,' depressive,' of'
useless,'loss'of'control'over'life),'and'emotional/status'(more'emo)
tional,' sometimes' crying,' short)tempered,' less' tolerant' and' nerv)
ous).' Only' PT' survivors' LS'was' linked' to' the' current' neurological'
impairments.' Difference' estimates' were' obtained' between' survi)
vors’'LS'and'Newsqol'self=care'(regression'coefficient'(rc)')0.28'PT),'
caregivers’'LS'(rc')0.63'PT)'and'Whoqol)bref'psychological'(rc')0.67'
PT),' environmental' (rc' )0.73' PT),' and' social/ relationship' (rc' )0.91'
PT).' LU' survivors’' LS'was' associated'with' all'Newsqol'dimensions;'
stronger'links'in'feelings'and'sleep;'none'with'caregivers’'Whoqol)
bref.'
Survivors''multi)dimensional'QoL'was' predictive' of' their' LS.' LU)PT'
differences' recalled' the' idea' of' the' cumulative' effect' throughout'
life'of' social' inequalities' in'health' and' highlighted' the' distinct' im)
pact' of' living' in' an' urban' society' turned' towards' community' sup)
ports'or'a'rural'society'based'on'domestic'care.'In'home'care'set)
tings,' survivors’' LS' and' Newsqol' are' patient)centred' markers' for'
individual'and'community'interventions.'
Research center :
- Integrative Research Unit: Social and Individual Development (INSIDE) > Institute for Health and Behaviour
Disciplines :
Sociology & social sciences Public health, health care sciences & services
BAUMANN, Michèle ;
University of Luxembourg > Faculty of Language and Literature, Humanities, Arts and Education (FLSHASE) > Integrative Research Unit: Social and Individual Development (INSIDE) Leandro, Maria-Engracia
Title :
Survivors, two years post-event, the influence of an unequality of life
Event name :
10th Conference ESA
Event organizer :
European Sociological Association (ESA) & University of Geneva & Swiss Sociological Association
Event place :
Geneva, Switzerland
Event date :
7-10 September 2011
Main work title :
Social Relations in Turbulent Times
Publisher :
ESA, Geneva, Switzerland
Edition :
Swiss Sociological Association
Peer reviewed :
Peer reviewed
FnR Project :
F3R-INS-PFN-060606 - AVC Vivre au GD après ac. cérébral final - BAUMANN Michèle
Name of the research project :
F3R-INS-PFN-060606 > AVC Vivre au GD après ac. cérébral final > > BAUMANN Michèle
Funders :
University of Luxembourg - UL
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