Sometimes we get it wrong but we keep on trying: A cross-sectional study of coping with communication problems by informal carers of stroke survivors with aphasia

Background: The need to support carers of stroke survivors is widely recognised.
However, research on which to base recommendations is scarce. Little research has
focused on carers of stroke survivors with aphasia, and that which exists suffers from
problems with sample size and methodology. More information is needed about methods
used by carers to manage communication difficulties and about coping strategies that
promote emotional wellbeing.
Aims: To assess the coping strategies used by informal carers of stroke survivors with
aphasia to manage communication problems, and their association with depressive symptoms.
To assess whether a problem-specific coping inventory offers an advantage over a
generic coping questionnaire for this purpose.
Methods & Procedures: Questionnaires were completed by 150 informal caregivers of
stroke survivors with aphasia. The Centre for Epidemiologic Studies Depression Scale
measured depressive symptoms. Coping was assessed with the Brief COPE and a problem-
specific questionnaire on coping with communication difficulties. Level of social
support was also assessed. Multiple regression analysis explored associations between
coping and depressive symptoms. Mediation analysis assessed the significance of the
indirect effect of coping between the level of communication impairment in the stroke
survivor and the degree of depressive symptoms in the carer.
Outcomes & Results: Participants reported a wide range of coping strategies. Avoidant
styles of coping were associated with increased depressive symptomatology. Coping by
use of positive reframing was linked with fewer symptoms of depression. Anticipated
level of social support was also associated with less depressive symptomology. The level of
communication impairment of the stroke survivor was not predictive of depressive symptoms
in carers after controlling for coping and social support. Limited support was found
for a mediating model of coping. Inclusion of one subscale from the problem-specific
questionnaire improved the amount of variance accounted for in depressive symptoms,
above that explained by the Brief COPE. Conclusions: The results verify that the impairment of the stroke survivor has less effect
on carers’ psychosocial functioning compared to coping. Assessment of coping can help
to identify carers presenting with increased risk of depression. A traditional coping
inventory provides an adequate assessment of the coping strategies used to manage communication
problems, and can be supplemented by specific questions about avoidance.
Interventions that develop some emotion-focused coping strategies in carers may support
adaptation. Interventions should also aim to decrease the use of unhelpful coping
strategies rather than solely focusing on increasing problem-focused forms of coping.