Reference : Access to paediatric palliative care in children and adolescents with complex chronic...

	Document type :	Scientific journals : Article
	Discipline(s) :	Human health sciences : Pediatrics
	To cite this reference:	http://hdl.handle.net/10993/53325

Title :	Access to paediatric palliative care in children and adolescents with complex chronic conditions: a retrospective hospital-based study in Brussels, Belgium
Language :	English
Author, co-author :	Friedel, Marie [University of Luxembourg > Faculty of Science, Technology and Medicine (FSTM) > Department of Life Sciences and Medicine (DLSM) >]
	Gilson, Aurélie [Institute of Health and Society, Université catholique de Louvain, Brussels, Belgium]
	Bouckenaere, Dominique [Fédération Bruxelloise Pluraliste de Soins Palliatifs, Brussels, Belgium]
	Brichard, Bénédicte [Fédération Bruxelloise Pluraliste de Soins Palliatifs, Brussels, Belgium]
	Fonteyne, Christine [Fédération Bruxelloise Pluraliste de Soins Palliatifs, Brussels, Belgium]
	Wojcik, Thomas [Fédération Bruxelloise Pluraliste de Soins Palliatifs, Brussels, Belgium]
	De Clercq , Etienne [Institute of Health and Society, Université catholique de Louvain, Brussels, Belgium]
	Guillet, Alain [Statistical Methodology and Computing Service (SMCS), Institute LIDAM, Université catholique de Louvain, Louvain-la-Neuve, Belgium]
	Mahboub, Alaa [Institute of Health and Society, Université catholique de Louvain, Brussels, Belgium]
	Lahaye, Magali [Institute of Health and Society, Université catholique de Louvain, Brussels, Belgium]
	Aujoulat, Isabelle [Institute of Health and Society, Université catholique de Louvain, Brussels, Belgium]
Publication date :	2019
Journal title :	BMJ Paediatrics Open
Publisher :	BMJ Publishing Group
Peer reviewed :	Yes
Audience :	International
e-ISSN :	2399-9772
Country :	United Kingdom
Keywords :	[en] Children ; Health services accessibility ; Multiple chronic conditions
Abstract :	[en] Background: Paediatric complex chronic conditions (CCCs) are life-limiting conditions requiring paediatric palliative care, which, in Belgium, is provided through paediatric liaison teams (PLTs). Like the number of children and adolescents with these conditions in Belgium, their referral to PLTs is unknown. Objectives: The aim of the study was to identify, over a 5-year period (2010-2014), the number of children and adolescents (0-19 years) living with a CCC, and also their referral to PLTs. Methods: International Classification of Disease codes (ICD-9) corresponding to a CCC, as described by Feudtner et al, and national registration numbers were extracted from the databases of all hospitals (n=8) and PLTs (n=2) based in the Brussels region. Aggregated data and pseudonymised national registration number were transmitted to the research team by a Trusted Third Party (eHealth). Ages and diagnostic categories were calculated using descriptive statistics. Results: Over 5 years (2010-2014) in the Brussels region, a total of 22 721 children/adolescents aged 0-19 years were diagnosed with a CCC. Of this number, 22 533 were identified through hospital registries and 572 through PLT registries. By comparing the registries, we found that of the 22 533 children/adolescents admitted to hospital, only 384 (1.7%) were also referred to a PLT. Conclusion: In Belgium, there may be too few referrals of children and adolescents with CCC to PLTs that ensure continuity of care.
Permalink :	http://hdl.handle.net/10993/53325
DOI :	10.1136/bmjpo-2019-000547

	File(s) associated to this reference
	Fulltext file(s): File Commentary Version Size Access Open access Friedel et al., 2019.pdf Publisher postprint 1.34 MB View/Open

All documents in ORBi^lu are protected by a user license.

 

University of Luxembourg Library |  Feedback |  Legal notices Site Map