References of "Baumann, Michèle 50000634"
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See detailVivre à domicile, deux ans après un AVC : Etude auprès des patients et des aidants du Luxembourg.
Baumann, Michèle UL

Presentation (2012)

Au Luxembourg, une recherche pluridisciplinaire a été réalisée auprès de 797 personnes victimes d’un accident vasculaire cérébral (AVC). Une enquête nationale a été menée comportant un volet ... [more ▼]

Au Luxembourg, une recherche pluridisciplinaire a été réalisée auprès de 797 personnes victimes d’un accident vasculaire cérébral (AVC). Une enquête nationale a été menée comportant un volet épidémiologique effectué par le CRP-Santé, qui a rassemblé des données médico-administratives et des données cliniques issues des dossiers d’hospitalisation, et un volet de sociologie médicale par l’Université qui a interrogé 94 patients vivant au domicile, deux après la survenue de l’AVC, et leurs 62 aidants informels principaux. Des recommandations majeures de santé publique et de politiques sociales peuvent être formulées sur la nécessité de mettre en place : 1) un système de surveillance des AVC, indispensable pour orienter les politiques de santé en termes de promotion, prévention et intervention; 2) une filière de soins AVC plus visible, mieux structurée et coordonnée; 3) un suivi social et éducatif par un « gestionnaire des familles AVC » (patients, mais aussi et surtout aidants) et des aides financières pour développer un véritable soutien à domicile à moyen et long terme; 4) une prévention primaire en faveur des aidants que les souffrances physiques, psychiques et la faible qualité de vie sociale amènent à devenir une « population à risque » du système de santé, situation qui touche directement, ou sera susceptible de concerner dans un avenir proche, la plus grande partie d'entre nous. [less ▲]

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See detailPatient-caregiver differences and dyad concordance towards psychosocial impacts of stroke
Bucki, Barbara UL; Baumann, Michèle UL

in Psychology and Health (2012), 27(suppl 1), 14

Are patient-caregiver dyads concordant when applying to stroke psychosocial impacts ? Methods: Two questionnaires administered two years poststroke in Luxemburg to 62 patients and their 62 natural ... [more ▼]

Are patient-caregiver dyads concordant when applying to stroke psychosocial impacts ? Methods: Two questionnaires administered two years poststroke in Luxemburg to 62 patients and their 62 natural caregivers include 15 common items assessing psychosocial impacts of stroke on both patients and caregivers. We (1) compare these impacts of stroke on patients and caregivers, and (2) use paired analysis of the concordance in responses within dyads. Findings: Patients feel ashamed, more often than caregivers imagine (11.3% vs. 3.2%*). Patients perceive less often than caregivers an upheaval in their couple (19.4% vs. 38.7%*), and preponderance of psychological difficulties (41.9% vs. 69.4%**). Loss of friends (90.7% convergent vs. 9.3% divergent*), social life (75% vs. 25%*) and family upheavals (76.8% vs. 23.2%*) are concordant subjects within dyads, contrary to feeling undervalued (62.8% vs. 37.2%; ns) and bonds’ strengthening (81.5% vs. 18.5%; ns). Discussion: Improving communication about feelings within patient-caregiver dyads may enhance their social capital as a health capability. [less ▲]

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See detailWhich Caregiving esteem for which Gender ?
Bucki, Barbara UL; Baumann, Michèle UL

in Psychology and Health (2012), 27(suppl 1), 170-171

Background: Two years after stroke, are the factors of the esteem of caregiving the same by gender? Methods: Face-to-face questionnaires administered to 92 Luxembourgish and Portuguese stroke patients and ... [more ▼]

Background: Two years after stroke, are the factors of the esteem of caregiving the same by gender? Methods: Face-to-face questionnaires administered to 92 Luxembourgish and Portuguese stroke patients and their 67 men and 25 women caregivers. For each sex, a multiple regression entering:- Neurological impairments,- Patients’ and caregivers’ life satisfaction [1;10],- Reactions towards caregiving: esteem (dependent variable), lack of family support, impacts on finances, schedule and health (Caregiver Reaction Assessment subscales),- Confidence in information subscale from the Carer Satisfaction Community Services. Results: Caregivers with a high caregiving esteem are, in women: those who trust information from community services ( ¼0.412***) and care for patients keeping few sensory impairments ( ¼0.300**; R2adj.¼0.257); in men : those who are low impacted on their health ( ¼0.471*) and care for patients satisfied with life ( ¼0.371; R2adj.¼0.447). Discussion: Home-based rehabilitation can be sustained by developing men and women caregivers’ specific health capabilities. [less ▲]

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See detailFailure of school project: the role of social, material, behavioural, physical and mental resources among multi-cultural students.
Chau, Kénora; Baumann, Michèle UL

in Psychosociological Work in Transcultural Contexts (2012)

Youth context require social-material-behavioral-mental resources to realize school achievement and their community participation, but they are lacking or altered for many adolescents. In an early ... [more ▼]

Youth context require social-material-behavioral-mental resources to realize school achievement and their community participation, but they are lacking or altered for many adolescents. In an early adolescence context, this study assessed the associations of these factors with repeating a school year, low school-performance, and quitting-school thinking at 16 years. Methods: Questionnaires were completed by 1559 middle-school adolescents from north-eastern France including: sex, age, family structure, parental education, income, and occupation, WHOQoL (quality of life for 4 domains physical, psychological, social relationship, and environment; <25th percentile value), last-30-day consumption of tobacco/alcohol/ cannabis/hard drug, regular sports/physical activities, victim of violence, sexual abuse, implication in violence, suicidal ideation, social supports, repeating a school year, low summer-term school-performance (<10/20), and quitting-school-thinking. Data were analyzed using logistic models which yield adjusted odds ratios (OR). Results: Repeating a school-year affected 14.7%, low school performance 8.2%, and quitting-school-thinking 3.9%. Repeating a school-year was significantly related to increasing age (OR 2.18), father being a manual worker (2.79 vs. manager/professional), clerk (2.36), craftsman/tradesman/firm-head (1.68), or unemployed (4.65), low WHOQoL-environment (2.29), tobacco use (1.70), and hard drug use (2.35). Low school-performance was linked with increasing age (OR 1.25), father being a manual worker (4.81 vs. manager/professional), clerk (3.30), craftsman/tradesman/firm-head (2.36), or unemployed (5.41), tobacco use (3.95), low WHOQoL-physical (2.27), and low WHOQoL-psychological (1.56). Quitting-school-thinking was associated with being male (OR 4.03), divorced/separated-parents (2.92 vs. intact family), not living with parent(s) (3.45), implication in violence (5.19), sexual abuse (4.11), and suicidal ideation (2.47). Conclusion: Socioeconomic living conditions and physical/mental difficulties have impressive impacts on failure of school project in youth. Public policy aiming at improving school achievement should focus on improvement of environment and living conditions, well-being, and monitoring physical/behavioral/mental difficulties as well as services appropriate to reduce school difficulties. This should promote community participation at adolescence and also at adulthood. [less ▲]

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See detailGender disparities of depressive mood and roles of family factors, school difficulty, violence, and unhealthy behaviours among adolescents
Chau, Kénora; Baumann, Michèle UL

in Social Justice and Democratization (2012)

Nowadays modern societies are to be more competitive and include more non-intact families and living difficulties due to employment and social deprivations. Adolescents may suffer from depressive mood (DM ... [more ▼]

Nowadays modern societies are to be more competitive and include more non-intact families and living difficulties due to employment and social deprivations. Adolescents may suffer from depressive mood (DM) which is common and multi-factorial. This study assessed, among boys and girls, the causal relationships between DM and parent education, nationality, occupation, income, divorce/separation, and death, repeating a school-year, lifetime alcohol/tobacco/cannabis/other drugs uses, victim of violence and sexual abuse, involvement in violence, and lack of social supports (family members/friends). Methods: 1559 middle-school adolescents from north-eastern France (mean age 13.5, SD 1.3) completed in class a questionnaire including DM (Kandel scale), factors studied, and their occurring/persisting period. Data were analyzed using Cox models taking into account risk factors which came before and persisted until DM occurring. Findings: Lifetime-DM affected 7.6% of boys and 19.1% of girls. Among girls factors with significant crude hazard ratios (HR) were: parent divorce/separation (1.57), insufficient income (1.95), repeating a school-year (1.95), victim of violence (2.99) or sexual abuse (4.96), and lack of supports (4.08 for score 1-2 and 7.74 for score 3+, vs. score 0) while tobacco use was close to significance (1.77). Taking all factors into account retained only repeating a school-year (adjusted HR 1.87), victim of violence (2.50) or sexual abuse (4.02), and lack of supports (3.83 and 7.28). Among boys, the significant factors were: hard-drug use (6.01), victim of violence (2.88), and lack of supports (2.27 and 4.78) while insufficient income (1.75), low parent education (1.60), and victim of sexual abuse (3.58) were close to significance. Full model retained only victim of violence (adjusted HR 2.29) and lack of supports (2.16 and 4.18). Conclusion: Taking chronology in consideration revealed strong gender disparities for DM and its associations with family characteristics, school difficulties, unhealthy behaviours, violence, and social supports that may be prevention targets. [less ▲]

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See detailLife satisfaction of two-year post-stroke survivors: effects of socioeconomic factors, motor impairment, Newcastle Stroke-specific Quality of Life leasure and World health Organization quality of Life-bref of informal caregivers in Luxembourg and a rural area in Portugal.
Baumann, Michèle UL; Lurbe-Puerto, Katia UL; Leandro, M. E. et al

in Cerebrovascular Diseases (2012), 33

Background: Life satisfaction of stroke survivors is known to be associated with socio-economic factors and the survivor’s and his/her caregiver’s quality of life, but their respective influence remains ... [more ▼]

Background: Life satisfaction of stroke survivors is known to be associated with socio-economic factors and the survivor’s and his/her caregiver’s quality of life, but their respective influence remains to be fully elucidated. Purpose: To analyse the stroke survivors’ life satisfaction 2 years after the event and its relationships with quality of life, socio-economic and stroke-related characteristics, and with informal caregivers’ life satisfaction and quality of life . Methods: Over 18 months, all stroke patients from Luxembourg and northeastern Portugal who lived at home were identified from the Inspection Générale de la Sécurité Sociale and hospital records, respectively. The clinical diagnosis of cerebrovascular disease was confirmed. We excluded all patients who declared that stroke did not result in neurological impairmentsat the time of stroke from the statistical analysis. The samples comprised 79 patients in Luxembourg and 48 in Portugal. Patients and the people they identified as their main caregivers were interviewed using validated questionnaires measuring life satisfaction, i.e. the Newcastle Stroke-Specific Quality of Life (Newsqol – 11 subscales), which identifies the areas affected by stroke among patients, and the World Health Organization Quality of Life – bref (Whoqol-bref – 4 subscales) of informal caregivers. Survivors without neurological impairment at the time of stroke were excluded. Data were analysed via multiple-regression models. Results: Life satisfaction was higher among women and lower among subjects with impaired motor functions. It was lower among Portuguese respondents with low-level education ( <12th grade) and higher among those at work (37.6/100). In Luxembourg, retired people had more life satisfaction than did working people (–7.9/100). Controlling for socio-economic factors, life satisfaction was associated with feelings- Newsqol (slope 0.25) among Luxembourg residents, and with feelings-, mobility- and self-care-Newsqol (slopes 0.24, 0.27 and 0.33, respectively) among Portuguese respondents. Life satisfaction of patients was strongly related to that offamily caregivers among the Portuguese respondents (slope 0.66) but the relationship was moderate in Luxembourg (slope 0.28). The survivors’ life satisfaction was not correlated with any Whoqol-bref domain in the Luxembourg group, but was correlated with the Whoqol-bref psychological, social relationships and environment domains among the Portuguese respondents (slopes 0.55, 0.59 and 0.51, respectively). Conclusions: The life satisfaction scale and the Newsqol stroke instrument, which identify areas of quality of life affected by stroke, are reliable patient-centred markers of intervention outcome. They can be used within the framework of medical follow-up (such as telephone assistance, clinical practice and prevention). Depending on the stroke survivor’s and the family caregiver’s habitual lifestyle and material circumstances, enhancement of a caregiver’s quality of life can help maintain the patient’s life satisfaction, particularly in a rural setting. [less ▲]

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See detailLife satisfaction two-years after stroke onset: the effects of gender, occupational status, memory function and quality of life among stroke patients (Newsqol) and their family caregivers (Whoqol-bref) in Luxembourg
Baumann, Michèle UL; Couffignal, Sophie; Le Bihan, Etienne UL et al

in BMC Neurology (2012), 12

Life satisfaction (LS) of cerebrovascular disease survivors and their family caregivers may relate to socioeconomic factors, impaired functions, health-related quality of life (QoL), but their respective ... [more ▼]

Life satisfaction (LS) of cerebrovascular disease survivors and their family caregivers may relate to socioeconomic factors, impaired functions, health-related quality of life (QoL), but their respective influences remain unclear. This study assessed, two years post-stroke onset, the effects of these factors on patients' LS and family caregivers' LS in Luxembourg. METHODS: All stroke patients admitted to all hospitals in Luxembourg were identified by the 'Inspection Général de la Sécurité Sociale' using the only national system database for care expenditure reimbursement. Their diagnosis was confirmed by medical investigator. The sample included ninety four patients living at home having given consent (mean age 65.5 years) and sixty two main caregivers (mean age 59.3 years). Questionnaires were completed during face-to-face interviews. LS was assessed via European single question (range 1-10), survivors' QoL via Newsqol (11 dimensions), and caregivers' QoL via Whoqol-bref (4 domains) (range 0-100). Data were analysed using multiple regression models. RESULTS: Two years after stroke onset, 44.7% of patients suffered from impaired sensory function, 35.1% from impaired motor function, and 31.9% from impaired memory function. Mean patient' LS was 7.1/10 (SD 1.9). It was higher in women (+12.4) and lower among unemployed socioeconomically active patients (-13.1, vs. retired people). Adjusted for sex, occupation, impaired motor and memory functions, LS positively correlated with scores of Newsqol feelings, sleep, emotion, cognition and pain dimensions (slopes 0.20 to 0.31), but did not correlate with those of caregivers' Whoqol-bref domains. Family caregiver' LS was 7.2 (SD 1.7). It was lower in those with patients suffering from impaired memory function (-12.8) as well as from feelings and emotion issues (slopes 0.22). It was associated with all caregivers' Whoqol-bref domains (physical health, psychological health, environment, and social relationships) (slopes 0.53 to 0.68). CONCLUSIONS: Two-year post-cerebrovascular disease patient' LS was associated with gender, occupation, and impaired memory function. It correlated with feelings, sleep, emotion, cognition, and pain issues. Family caregivers of patients with impaired memory function had lower LS. Family caregiver' LS correlated with dimensions of patients' feelings (less independent, yourself, life changed, depressed, useless, less control because of stroke) and emotion (get more emotional, fear of another stroke or to become dependent on others), and with their own QoL. LS, Newsqol, and Whoqol appeared to be appropriate tools. Our findings may be useful for policy makers in relation to family and medical-social issues of stroke home-based rehabilitation. [less ▲]

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See detailPrendre soin des personnes après AVC : réactions émotionnelles des aidants informels hommes et femmes.
Bucki, Barbara UL; Baumann, Michèle UL

in Santé Publique: Revue Multidisciplinaire pour la Recherche et l'Action (2012), 24(2), 143-156

The objective of this study was to assess the emotional response to caregiving among stroke caregivers living in Luxembourg, and to assess the social and psychological impact of strokes on households, two ... [more ▼]

The objective of this study was to assess the emotional response to caregiving among stroke caregivers living in Luxembourg, and to assess the social and psychological impact of strokes on households, two years after the event. Questionnaires were administered to 62 patient (64.4 years old)/caregiver (59.3 years old) dyads. The survey focused on: 1) residual impairments, based on the American Heart Association Stroke Outcome Classification; 2) the Caregiver Reaction Assessment (CRA – 24 items – 5 dimensions); and 3) changes in the division of household tasks (seven items). Although male and female caregivers care for patients with similar residual impairments, the study found that female caregivers were more likely to be affected by the impact of caregiving on their health and schedule and by lack of family support. Women were more likely to feel “tired all the time” (50% vs. 12.5%), to struggle to “find time to relax” (35.7% vs. 6.3%) and to feel that “others dumped caring onto them” (35.7% vs. 11.8%). Since the onset of stroke, women had also taken on more responsibilities in the household (37.5% vs. 5.9%), while men were more likely to “enjoy caring” for patients (93.8% vs. 67.9%) and to have become more involved in organizing holidays (29% vs. 5.6%) and seeing friends (20.6% vs. 10.5%). Because of the high level of exhaustion, particularly among women, caregivers are a high-risk population for the healthcare system. Interventions such as trialogue and counseling are required to meet the needs of male and female caregivers. [less ▲]

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See detailEvaluation-conseil, demarche comprehensive, indicateurs de perception
Amara, Marie-Emmanuelle UL; Baumann, Michèle UL

in Evaluation et enseignement supérieur (2011)

Sous l’impulsion du processus de Bologne, les établissements de l'Espace Européen de l'Enseignement Supérieur mettent en place des systèmes Qualité. Des référentiels d'évaluation communs et des guides ... [more ▼]

Sous l’impulsion du processus de Bologne, les établissements de l'Espace Européen de l'Enseignement Supérieur mettent en place des systèmes Qualité. Des référentiels d'évaluation communs et des guides visent, au nom du processus d'harmonisation, à diffuser les "bonnes pratiques" dans tous les pays participants. Les universités sont sommées d'être productives et d'adopter une gestion rationnelle de l'ensemble de leurs ressources. Ainsi, les programmes sont généralement évalués a posteriori à l'aide d'indicateurs de performance comme les taux de réussite aux examens ou d'insertion professionnelle des diplômés, et la pratique généralisée du benchmarking tend à favoriser l'utilisation de ces statistiques descriptives pour effectuer des comparaisons puis des classements nationaux et internationaux (Shanghai, Times Higher Education). Cependant, certains enseignants et chercheurs souhaitent, dans une perspective holistique, considérer également le bien-être et le développement personnel des étudiants. Le dispositif SQALES, testé auprès d'un échantillon de 282 étudiants belges, luxembourgeois et roumains, propose une approche de l'évaluation novatrice reposant sur de la perception qu'ont les étudiants de leurs compétences relatives à l'employabilité (échelle CRE), de leur santé psychologique (GHQ12) et de leur sentiment d'appartenance à la vie étudiante (échelle d'Identité Sociale d'Etudiant, ISE). Cette évaluation-conseil s'appuie sur une démarche compréhensive qui tient compte du contexte local et implique les bénéficiaires en tant que partenaires du processus décisionnel. Réalisée en cours de cursus, elle permet de prendre en compte "en temps réel" les difficultés rencontrées par les apprenants et d'adapter les curricula à leurs besoins, lesquels évoluent au fil de la formation, en fonction de leur construction identitaire. L'évaluateur n'agit pas en juge, mais encourage la réflexivité des acteurs et des institutions. La recherche d'un consensus concernant les ajustements à réaliser permet de réduire l'écart entre les besoins ressentis et les dispositions prises, décisions dont elle permet d'obtenir une meilleure tolérance et une mise en œuvre facilitée. [less ▲]

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See detailSurvivors, two years post-event, the influence of an unequality of life
Baumann, Michèle UL; Lurbe, Katia UL; Leandro, Maria-Engracia

in Social Relations in Turbulent Times (2011)

Two' years' post)event,' we' described' the' survivors’' life' satisfaction' (LS)' and'Quality'of' Life' (QoL),' the' LS' and'QoL'of' their' caregivers,'and'their'socio)demographic'and'health ... [more ▼]

Two' years' post)event,' we' described' the' survivors’' life' satisfaction' (LS)' and'Quality'of' Life' (QoL),' the' LS' and'QoL'of' their' caregivers,'and'their'socio)demographic'and'health'characteristics.' We'analysed'survivors’'LS'and'its'associations'with'these'determi) nants,'from'a'national'(mainly'urban'society)'survey'in'Luxembourg' (LU)'and'a'Bragança'district'(mainly'rural)' survey' in'the'Northeast' Portugal'(PT).' Over' 18' months' stroke' survivors' (≥18' years)' living' at' home' and' having'given'their'informed'consent'were'contacted.'The'Inspection/ Générale/de/la/Sécurité/Sociale'(LU)'and'the'District'Health'Centre' (PT)'had'previously'listed'all'confirmed'diagnosis'population.'Survi) vors' and' their' main' caregivers' were' interviewed' at' home' with' questionnaires'measuring'LS'(scale'1)10)'and'validated'QoL’'scales:' survivors’' Newcastle' Quality' of' Life' (Newsqol);' Whoqol)Bref' for' caregivers.' Participation'rate'was'26.5%'LU,'38%'PT:'94'LU'(65.5'years)'and'50' PT' (70.1)' survivors;' 62' LU' (59.3)' and' 46' PT' (60.7)' caregivers.' LU' survivors'and'caregivers'had'higher'QoL'scores'than'PT'samples.'PT' survivors' were' more' affected' by' stroke' impacts,' with' significant' differences' in'Newsqol'mobility,' ‘self)care’' (preparing' food,' shop) ping,' transport,' getting' washed,' dressed' and' showed),' feelings' (dependence,' about' oneself,' change' acceptance,' depressive,' of' useless,'loss'of'control'over'life),'and'emotional/status'(more'emo) tional,' sometimes' crying,' short)tempered,' less' tolerant' and' nerv) ous).' Only' PT' survivors' LS'was' linked' to' the' current' neurological' impairments.' Difference' estimates' were' obtained' between' survi) vors’'LS'and'Newsqol'self=care'(regression'coefficient'(rc)')0.28'PT),' caregivers’'LS'(rc')0.63'PT)'and'Whoqol)bref'psychological'(rc')0.67' PT),' environmental' (rc' )0.73' PT),' and' social/ relationship' (rc' )0.91' PT).' LU' survivors’' LS'was' associated'with' all'Newsqol'dimensions;' stronger'links'in'feelings'and'sleep;'none'with'caregivers’'Whoqol) bref.' Survivors''multi)dimensional'QoL'was' predictive' of' their' LS.' LU)PT' differences' recalled' the' idea' of' the' cumulative' effect' throughout' life'of' social' inequalities' in'health' and' highlighted' the' distinct' im) pact' of' living' in' an' urban' society' turned' towards' community' sup) ports'or'a'rural'society'based'on'domestic'care.'In'home'care'set) tings,' survivors’' LS' and' Newsqol' are' patient)centred' markers' for' individual'and'community'interventions.' [less ▲]

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See detailL’estime ressentie en accomplissant le rôle d’aidant naturel et ses déterminants psychosociaux
Bucki, Barbara UL; Spitz, E.; Baumann, Michèle UL

in La pratique: un lieu de théorie (2011)

Avec l’augmentation des accidents vasculaires cérébraux (AVC), améliorer le bien-être des aidants naturels (AN) est devenu une priorité. Quels sont les déterminants psychosociaux de l’estime ressentie par ... [more ▼]

Avec l’augmentation des accidents vasculaires cérébraux (AVC), améliorer le bien-être des aidants naturels (AN) est devenu une priorité. Quels sont les déterminants psychosociaux de l’estime ressentie par les AN en accomplissant ce rôle ? Méthodologie. Sur une période de 12 mois, les personnes victimes d’un AVC deux ans auparavant, dont le diagnostic a été confirmé, vivant au Luxembourg et ayant donné leur consentement, ont désigné leur AN principal. Etude nationale transversale menée au domicile. Instruments : - Caregiver Reaction Assessment : estime de l’aide, manque de soutien familial, impacts financier, sur l’emploi du temps, sur la santé générale. - Carer Satisfaction of Community Services : services socio-sanitaires et éducatifs - Aides à domicile utilisées : soins corporels, repas, ménage, sorties, courses Résultats. Taux participation 26,5 % ; 48 AN (59,5 ±12,3 ans). Régression multiple (R²ajusté=.230) : une estime élevée est associée à un faible impact de l’aide sur la santé (β=.479***) et un recours important aux aides à domicile (β=.351**). Discussion. Il est possible de valoriser le rôle d’AN en motivant les aidants à utiliser les services disponibles pour les soulager dans leurs tâches quotidiennes. Les soutiens psychologiques peuvent également intégrer le concept de « health capability » pour renforcer l’acquisition de cette estime. [less ▲]

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See detailDay-to-day home caring for a stroke survivor, two-year post-stroke perceived psychosocial impacts for woman caregivers in Luxembourg
Bucki, Barbara UL; Lurbe-Puerto, Katia UL; Baumann, Michèle UL

in Women’s Mental Health (2011)

In the Grand-Duchy of Luxembourg (GDL) informal caregivers are increasingly requested to provide daily home care to stroke survivors to avoid institutionalization (Kjellstrom et al. 20071). As this major ... [more ▼]

In the Grand-Duchy of Luxembourg (GDL) informal caregivers are increasingly requested to provide daily home care to stroke survivors to avoid institutionalization (Kjellstrom et al. 20071). As this major life event brings upheavals to caregiver-survivor pairs, we aimed to identify and analyse the perceived psychosocial impacts for female caregivers. Method. Over 12 months, with the help of the Social Security, two-years post-stroke survivors were contacted, and 41 women (59,1 years) and 21 men (59,6 years) informal caregivers consented to participate in this cross national survey. Research assistants interviewed them at home, using face-to-face questionnaires, containing: 1) Life Satisfaction (LS) measure in accordance to the European Quality of Life Study (EQLS)2 (scale 0 - 10) ; 2) Caregiver Reaction Assessment 24 assertions (CRA) (Given et al., 19923); 3) 7 questions about the evolution of caregivers’ tasks and responsibilities in the household since the stroke onset. Means and percentages and, a comparison between sexes were estimated using t tests and chi². Results. The LS mean is lower in woman caregivers (6.84 vs. 8.00 male caregivers t = - 2.52). Women appear to be more affected in terms of physical health (33.0 ±22.1 vs. 19.1±20.1 t = 2.06), disrupted schedule (46.7 ±29.7 vs. 26.2 ±18.8 t = 2.54) and lack of family support (39.9 ±24.7 vs. 25.0 ±15.6 t = 2.18). More women responded to feel « tired all the time » (50.0% vs. 12.5% p=0.013) and found « difficult to find time for relaxation » (35.7% vs. 6.3% p=0.030). They admitted “others have dumped caring for their partner onto them” (35.7% vs. 11.8% p=0.078) and had difficulty “to get help from their family” (17.9% vs. 0.0% p = 0.073). Women considered to be more “in charge of the relationships with professionals” (52.0% vs. 6.3% p=0.003) and to “have more household responsibilities” than before the event (37.5% vs 5.9% p=0.020). Less women declared to « enjoy caring for their partner » (67.9% vs. 93.8% p= 0.049). Conclusions. Informal woman caregivers’ LS average (6.84) were one point lower than the indicator in 2007 for the GDL general population (7.85) who participated at the EQLS, near to the EU-27’ one (7.0). Our study showed their psychosocial repercussions them to require gender-based adaptation strategies to perform their caregiving role. Interventions reinforcing women’s health capability could improve their LS. Follow-up qualitative research would help to identify and understand women’s specific needs regarding these capabilities to develop. [less ▲]

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See detailThe configurations of a therapeutic failure with children of marginalised Roma families: for transcultural approach.
Lurbe-Puerto, Katia UL; Baumann, Michèle UL

in Psychology and Health (2011), 26(suppl 2), 165

Background: Alin (born in 1993, Timisoara, Rumania) is the elder son of a Roma family settled for ten years in France, having heavy psychomotor and cognitive deficiencies. Method: Case study of Alin’s ... [more ▼]

Background: Alin (born in 1993, Timisoara, Rumania) is the elder son of a Roma family settled for ten years in France, having heavy psychomotor and cognitive deficiencies. Method: Case study of Alin’s psychotherapeutic trajectory. Findings. Socio-cultural representations of mental handicaps, intrafamilial relationships and personal history are interactive determinants of psychological accompaniment and healthcare provision. Mental healthcare team in charge of Alin misconceived in the relations of care: the central role played by the particular status family network attributes to the person with mental handicap and the articulation between diversity, difference and inequality in the family’s experience of mental handicap and its care. Discussion: In socio-culturally diverse contexts, the quality of relations of care depends on professionals’ capability to develop socio-culturally sensitive and responsive to beneficiaries’ needs psychotherapeutics. Transcultural approach is not effective unless it is integrated to conventional psychological practice, and a collaborative work is settled with the concerned professionals of social work and associative sectors. [less ▲]

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See detailThe place oof health and the micro-prowers of health professionals in rtenetion centers for unauthorised migrants multi-situated ethnographic research (France-Spain).
Lurbe-Puerto, Katia UL; Baumann, Michèle UL

in Social Relations in Turbulent Times (2011)

This research aimed to identify the place of health in Immigrants Retention Centres (IRC) and analyse the role of the health professionals regarding border control and immigration policies. The current ... [more ▼]

This research aimed to identify the place of health in Immigrants Retention Centres (IRC) and analyse the role of the health professionals regarding border control and immigration policies. The current structures to confine unauthorised migrants seem to address a two-fold issue: the repressive approach to controlling immigration and the increasing set-up of facilities participating in a mode of government centred on national security concern. Method. Ethnographical study was conducted in the Medical Units of a French (capacity: 35 pers.) and a Spanish (150 pers.) ICR for respectively, 9-months with a regularity of 30 half-days of presence every fortnight and 21 continuous days over a 3-weeks period. Qualitative data from observational notes and conversional interviews were triangulated and analysed under the Critical Categorical Content Discourse method, with Atlas.ti support. Findings. Illnesses that could halt deportation were infectious diseases involving treatment requiring a specialized infrastructure (tuberculosis); in France, those whose representation is bound to feelings of fear and disgust (mange) and mental illness that poses a threat to the individual and other persons; in Spain, pregnancy is a reason to allow a release from IRC. Squats are raid when expulsion quotas need to be filled; it accounted for the increased number of substance dependent persons in ICR at that time. Health professionals in IRC confront moral dilemmas. In France, they have a recognised micro-power able to overturn a deportation order: the medical certificate. Discussion. In ensuring healthcare access, they are drawn into the vigilance and control logics of the IRC security regime, despite themselves. Standardization of the medical practices is their main fall back and provides for risks management, which relies on the architecture and the neatness of the space, individual strategies of exception and social relationship that are shaped by a moral economy. The retreat into medical grounds allows keeping things “professional”and helps balance the tension resulting from providing medical care in a space that automatically appears to translate any act into one carried out in compliance with the repressive policy against undesired migration. Institutionalisation of European IRC medical units network is recommended to confront inequalities in care (access and quality). [less ▲]

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See detailPsychological quality of life and its association with Academic Employability Skills among newly-registered students from three European faculties.
Baumann, Michèle UL; Ionescu, Ion; Chau, Nearkasen

in BMC Psychiatry (2011)

In accord with new European university reforms initiated by the Bologna Process, our objectives were to assess psychological quality of life (QoL) and to analyse its associations with academic ... [more ▼]

In accord with new European university reforms initiated by the Bologna Process, our objectives were to assess psychological quality of life (QoL) and to analyse its associations with academic employability skills (AES) among students from the Faculty of Language, Literature, Humanities, Arts and Education, Walferdange Luxembourg (F1, mostly vocational/applied courses); the Faculty of Social and Human Sciences, Liege, Belgium (F2, mainly general courses); and the Faculty of Social Work, Iasi, Romania (F3, mainly vocational/professional courses). Method: Students who redoubled or who had studied at other universities were excluded. 355 newly-registered first-year students (145 from F1, 125 from F2, and 85 from F3) were invited to complete an online questionnaire (in French, German, English or Romanian) covering socioeconomic data, the AES scale and the QoL-psychological, QoL-social relationships and QoL-environment subscales as measured with the World Health Organisation Quality of Life short-form (WHOQoL-BREF) questionnaire. Analyses included multiple regressions with interactions. Results: QoL-psychological, QoL-social relationships and QoL-environment’ scores were highest in F1 (Luxembourg), and the QoL-psychological score in F2 (Belgium) was the lower. AES score was higher in F1 than in F3 (Romania). A positive link was found between QoL-psychological and AES for F1 (correlation coefficient 0.29, p < 0.01) and F3 (correlation coefficient 0.30, p < 0.05), but the association was negative for F2 (correlation coefficient -0.25, p < 0.01). QoL-psychological correlated positively with QoL-social relationships (regression coefficient 0.31, p < 0.001) and QoL-environment (regression coefficient 0.35, p < 0.001). Conclusions: Psychological quality of life is associated with acquisition of skills that increase employability from the faculties offering vocational/applied/professional courses in Luxembourg and Romania, but not their academically orientated Belgian counterparts. In the context of developing a European Higher Educational Area, these measurements are major indicators that can be used as a guide to promoting programs geared towards counseling, improvement of the social environment, and services to assist with university work and facilitate achievement of future professional projects. Keywords: students WHOQoL-BREF, QoL-psychological, employability, academic skills, QoL-environmental, QoLsocial relationships [less ▲]

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See detailDifferences between Luxembourg and Portugal in the Life Satisfaction of Stroke Survivors, two years post-event: The influence of an unequal quality of life.
Baumann, Michèle UL; Lurbe-Puerto, Katia UL; Leandro, ME.

in Health inequalities across Europe (2011)

Two years post-event, we described the survivors’ life satisfaction (LS) and Quality of Life (QoL), the LS and QoL of their caregivers, and their socio-demographic and health characteristics. We analysed ... [more ▼]

Two years post-event, we described the survivors’ life satisfaction (LS) and Quality of Life (QoL), the LS and QoL of their caregivers, and their socio-demographic and health characteristics. We analysed the survivors’ LS and its associations with the above-mentioned determinants from a national (mainly urban society) survey in Luxembourg (LU) and a Bragança district (mainly rural) survey in the Northeast of Portugal (PT). Methods. Over 18 months, survivors (≥18 years) of a stroke, living at home and having given their informed consent were contacted. The Inspection Générale de la Sécurité Sociale of LU and the District Health Centre in PT had previously confirmed all diagnoses and listed the potential participants. Survivors identified their caregivers and both were interviewed, at home, using questionnaires measuring LS (scale 1-10) and two internationally validated QoL’ scales: the survivors’ Newcastle Quality of Life (Newsqol) and the Whoqol-Bref for the caregivers. Results. The participation rate was 26.5% LU and 38% PT: 94 LU (65.5 years) and 50 PT (70.1 years) survivors; 62 LU (59.3 years) and 46 PT (60.7 years) caregivers. The LU survivors and their caregivers had higher QoL scores than the PT samples. In contrast, the PT survivors were more affected by stroke-related impacts, with significant differences in Newsqol ‘mobility’ (i.e. walking, managing stairs, bending down, standing), ‘self-care’ (i.e. preparing food, shopping, using transport, getting washed, getting dressed, and showed), feelings regarding the current situation (i.e. less independence, feelings about oneself, life changes acceptance, depressive mood, feelings of useless, loss of control over their life), and their emotional status (i.e. more emotional, sometimes crying, short-tempered, less tolerant and nervous). Only the PT survivors’ LS was linked to the ‘current neurological impairment’ domains. The LU survivors’ LS was associated with all Newsqol dimensions; stronger links (p<0.001) were found in ‘feelings’ and ‘sleep’, but no relation existed with the caregivers’ Whoqol-bref domains. Difference estimates were obtained between the survivors’ LS and the Newsqol ‘self-care’ dimension (regression coefficient (rc) -0.28 for PT), their caregivers’ LS (rc -0.63 for PT) and Whoqol-bref psychological (rc -0.67 for PT), environmental (rc -0.73 for PT), and social relationship (rc -0.91 for PT) domains. Discussion. Two years post-event, the survivors' multi-dimensional QoL was a more relevant predictor of their LS, than that of their caregivers. LU-PT differences recalled the hypothesis of the cumulative effect throughout life of social inequalities in health and highlighted the distinct impact in survivors’ LS of living in an urban society, turned towards community supports or in a rural society based on a domestic care. In home-based care settings, the survivors’ LS and Newsqol are useful patient-centred markers for individual and community interventions. [less ▲]

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See detailConstruçao de rupturas sociais: pobreza e exclusao social na perspectiva das sociologias
Leandro, M. E.; Baumann, Michèle UL

in Da integracao social. Laços Familiares e Sociais. (2011)

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See detailTwo years post-stroke, predictors of survivors’ life satisfaction: common associations between Luxembourg and Portugal.
Baumann, Michèle UL; Lurbe-Puerto, Kàtia UL; Bucki, Barbara UL et al

in Psychology and Health (2011), 26(suppl 2), 90

Two years post-stroke, we analysed the survivors’ LS by looking at its associations with their QoL and their informal caregivers’ QoL and drawing from a national survey in Luxembourg (LU) and a Braganc¸a ... [more ▼]

Two years post-stroke, we analysed the survivors’ LS by looking at its associations with their QoL and their informal caregivers’ QoL and drawing from a national survey in Luxembourg (LU) and a Braganc¸a district survey in Portugal (PT). Method: Face-to-face structured interviews at home. Findings: For LU, the 94 stroke survivors’ LS was linked with all survivors’ Newsqol (Newscstle Stroke-Specific Quality of Life)* dimensions, with strong links for feelings and sleep. No association was observed with their 62 caregivers’ Whoqol-bref domains. For PT, the 50 survivors’ LS was correlated with all Newsqol’ dimensions (except vision) with strong relations for mobility, self-care, feelings and sleep, and with all 46 caregivers’ Whoqol-bref domains (physical, psychological, environmental and social relationships). Discussion: Common associations exist with stronger links for PT. Survivors’ QoL is a predictor of LS which is a useful patient-centred marker for the practice of the psychologists who develop family interventions and counselling programmes. [less ▲]

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See detailQuality of life social disparities and roles of family and unhealthy behaviours among adolescents.
Chau, Kénora; Kabuth, Bernard; Baumann, Michèle UL

in Psychology and Health (2011), 26(suppl 2), 147

Adolescents’ quality of life determinants include socioeconomic characteristics and unhealthy behaviours. This study explored WHOQOL social disparities and the roles of family structure, income and ... [more ▼]

Adolescents’ quality of life determinants include socioeconomic characteristics and unhealthy behaviours. This study explored WHOQOL social disparities and the roles of family structure, income and unhealthy behaviours. Methods: 1556 middle-school adolescents from north-eastern France completed a self-administered questionnaire measuring WHOQOL domains and other factors. Data were analysed using multiple regression models. Findings: Significantly lower WHOQOL was found for clerk (gender-age-adjusted regression coefficient r 5.8 (SE 1.1)), manual-worker ( 5.7 (1.5)), unemployed/inactive ( 10.3 (1.5)) and other categories ( 1.3 to 3.2), compared with manager families. Controlling for family structure and income highly reduced the r to 2.45 (1.1), 2.3 (1.5), 5.3 (1.6) and 1.5 to 0.89 (NS), respectively. The disparities remained after further controlling for last-month tobacco/alcohol/cannabis uses and lack of sports-physical activity. Similar findings were found for all physical, psychological, social relationships and environment WHOQOL domains. Discussion: WHOQOL disparities are highly explained by family structure, income and unhealthy behaviours that may be prevention targets. [less ▲]

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See detailOn the collaborative work between psychiatry and social work in developing transcultural capability in mental health care.
Lurbe-Puerto, Katia UL; Baumann, Michèle UL

in Effets psychosociaux de la mondialisation sur la santé mentale. (2011)

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