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See detailProjet Approche Patient Partenaire de Soins (APPS) - Projekts Ansatz der Patienten-Partner-Betreuung
Odero, Angela UL; Baumann-Croisier, Pierre; Chauvel, Louis UL et al

Conference given outside the academic context (2022)

Notre projet a permis d’observer une volonté affichée d’évoluer vers davantage d’engagement du patient dans la relation de soin et dans les structures de soins de santé. Le développement attendu passera ... [more ▼]

Notre projet a permis d’observer une volonté affichée d’évoluer vers davantage d’engagement du patient dans la relation de soin et dans les structures de soins de santé. Le développement attendu passera par une approche systémique de l’engagement tant sur des aspects micro (de la relation de soin) méso (dans la coordination des structures de soins) et macro (avec l’engagement des politiques de santé). Le développement doit s’appuyer sur les initiatives existantes : en ce sens le projet Interreg est une belle façon de promouvoir les échanges de bonnes pratiques au service de cet engagement du patient. [less ▲]

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See detailCoronavirus Disease and General Practitioners in Luxembourg: a pandemic experience. Recommandations for the FutureRE
Delphin Pena, Maryher Zar; Baumann, Michèle UL; Gomez Barvo, Raquel

in WOrld family doctors CAring for people (2021)

The COVID-19 is a pandemic with no precedents in the world. GPs are at the forefront of the first intervention. Therefore, a current evaluation of their experiences while performing their role is ... [more ▼]

The COVID-19 is a pandemic with no precedents in the world. GPs are at the forefront of the first intervention. Therefore, a current evaluation of their experiences while performing their role is necessary to develop new strategies, prepare plans for future pandemics, and improve the care provided Our aims were investigated to; (i) Analyze challenges while performing their role in this context (ii) Identify problems, needs, and opportunities associated with their experiences and (iii) Determine their proposals for an improvement in the management of future pandemics. Methodology: From April 17, 2020, to August 18, 2020, a qualitative study was conducted with semi-structured interviews among GPs in Luxembourg. A content thematic categorical analysis was performed. Verbatims were extracted and regrouped into categories and categories reformulated into items. A total of 60 items were classified into dimensions to cover the study aims. Results: 18 GPs have participated. They expressed difficulties in managing COVID19 related patients, guaranteeing continuity of care of non-COVID patients, implementing telehealth, managing their self-protection (physical and psychological), solving information gap problems, and deficient communication with authorities. Additionally, GPs proposed to involve more family medicine in the health care system and to improve its relationships with other healthcare organizations and professionals. Develop protocols and guidelines addressed to GPs. Professionalized communication, as well as improve the use of eHealth and virtual platforms. Conclusion: Our findings reinforce the importance of developing new strategies to empower family medicine in the healthcare system during and after the pandemic-period and improve coordination and communication with authorities and patients. [less ▲]

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See detailSocioeconomic and behavioural factors associated with access to and use of Personal Health Records
Paccoud, Ivana UL; Baumann, Michèle UL; Le Bihan, Etienne UL et al

in BMC Medical Informatics and Decision Making (2021), 21

Background: Access to and use of digital technology are more common among people of higher socioeconomic status. These differences might be due to lack of interest, not having physical access or having ... [more ▼]

Background: Access to and use of digital technology are more common among people of higher socioeconomic status. These differences might be due to lack of interest, not having physical access or having lower intentions to use this technology. By integrating the digital divide approach and the User Acceptance of Information Technology (UTAUT) model, this study aims to further our understanding of socioeconomic factors and the mechanisms linked to different stages in the use of Personal Health Records (PHR): desire, intentions and physical access to PHR. Methods: A cross-sectional online and in-person survey was undertaken in the areas of Lorraine (France), Luxembourg, Rhineland-Palatinate and Saarland (Germany), and Wallonia (Belgium). Exploratory factor analysis was performed to group items derived from the UTAUT model. We applied linear and logistic regressions controlling for country-level heterogeneity, health and demographic factors. Results: A total of 829 individuals aged over 18 completed the questionnaire. Socioeconomic inequalities were present in the access to and use of PHR. Education and income played a significant role in individuals' desire to access their PHR. Being older than 65 years, and migrant, were negatively associated with desire to access PHR. An income gradient was found in having a physical access to PHR, while for the subgroup of respondents who expressed desire to have access, higher educational level was positively associated with intentions to regularly use PHR. In fully adjusted model testing the contribution of UTAUT-derived factors, individuals who perceived PHRs to be useful and had the necessary digital skills were more inclined to use their PHR regularly. Social influence, support and lack of anxiety in using technology were strong predictors of regular PHR use. Conclusion: The findings highlight the importance of considering all stages in PHR use: desire to access, physical access and intention to regularly use PHRs, while paying special attention to migrants and people with lower socioeconomic backgrounds who may feel financial constraints and are not able to exploit the potential of PHRs. As PHR use is expected to come with health benefits, facilitating access and regular use for those less inclined could reduce health inequalities and advance health equity. [less ▲]

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See detailCross-border mobility in European countries: associations between cross-border worker status and health outcomes
Nonnenmacher, Lucas UL; Baumann, Michèle UL; Le Bihan, Etienne UL et al

in BMC Public Health (2021)

Mobility of workers living in one country and working in a different country has increased in the European Union. Exposed to commuting factors, cross-border workers (CBWs) constitute a potential high-risk ... [more ▼]

Mobility of workers living in one country and working in a different country has increased in the European Union. Exposed to commuting factors, cross-border workers (CBWs) constitute a potential high-risk population. But the relationships between health and commuting abroad are under-documented. Our aims were to: (1) measure the prevalence of the perceived health status and the physical health outcomes (activity limitation, chronic diseases, disability and no leisure activities), (2) analyse their associations with commuting status as well as (3) with income and health index among CBWs. Based on the ‘Enquête Emploi’, the French cross-sectional survey segment of the European Labour Force Survey (EU LFS), the population was composed of 2,546,802 workers. Inclusion criteria for the samples were aged between 20 and 60 years and living in the French cross-border departments of Germany, Belgium, Switzerland and Luxembourg. The Health Index is an additional measure obtained with five health variables. A logistic model was used to estimate the odds ratios of each group of CBWs, taking non-cross border workers (NCBWs) as the reference group, controlling by demographic background and labour status variables. A sample of 22,828 observations (2456 CBWs vs. 20,372 NCBWs) was retained. The CBW status is negatively associated with chronic diseases and disability. A marginal improvement of the health index is correlated with a wage premium for both NCBWs and CBWs. Commuters to Luxembourg have the best health outcomes, whereas commuters to Germany the worst. CBWs are healthier and have more income. Interpretations suggest (1) a healthy cross-border phenomenon steming from a social selection and a positive association between income and the health index is confirmed; (2) the existence of major health disparities among CBWs; and (3) the rejection of the spillover phenomenon assumption for CBWs. The newly founded European Labour Authority (ELA) should take into account health policies as a promising way to support the cross-border mobility within the European Union. [less ▲]

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See detailOrienter les soins vers le patient partenaire. Un livre blanc pour la Grande Région
Consortium APPS INTERREG; Baumann, Michèle UL; Chauvel, Louis UL et al

Book published by INTERREG APPS (2020)

Les différents chapitres de ce livre proposent une approche holistique pour faire évoluer le système de santé vers le partenariat de soins. Résultat de trois années de recherche et de concertation, le ... [more ▼]

Les différents chapitres de ce livre proposent une approche holistique pour faire évoluer le système de santé vers le partenariat de soins. Résultat de trois années de recherche et de concertation, le Livre Blanc s’appuie sur des recherches documentaires (analyse de la littérature scientifique et de la législation spécifique de chaque pays), des entretiens et des enquêtes auprès de nombreux acteurs, le repérage et l’analyse d’initiatives en GR et la discussion orientée vers le consensus. Par ailleurs, les propositions de recommandations ont été élaborées et discutées lors d’un séminaire interrégional réalisé en décembre 2019. Le Livre Blanc est structuré en 5 parties qui s’adressent chacune à un public ciblé. La première partie situe le contexte dans lequel s’est réalisé le projet et décrit la méthodologie du programme. La seconde partie est consacrée aux aspects réglementaires de l’approche patient partenaire et à leurs conséquences sur les pratiques et les initiatives analysées sur le terrain. Elle est destinée de manière privilégiée aux mandataires politiques. La troisième partie propose une réflexion sur le développement de stratégies de partenariat au niveau des institutions de santé. Elle concerne les gestionnaires des établissements de santé. La quatrième partie vise à amener les professionnels à s’interroger sur ce que le partenariat de soins peut leur apporter dans leurs pratiques de soins. Elle s’adresse, en particulier, aux acteurs en contact direct avec les patients. La cinquième et dernière partie suggère différentes voies possibles de développement de l’APPS dans les domaines de l’enseignement et de la recherche. Toutes ces parties s’adressent bien évidemment au patient, qui est au coeur de l’APPS. Les prises de position proposées par ce Livre Blanc s’appuient sur les données collectées par le consortium de recherche de 2017 à 2020. Dès lors, ce document ne peut être exhaustif et est appelé à évoluer, basé davantage sur une fonction vectrice de normes que de règles. Pour davantage d’information et pour connaitre nos activités et nos publications, rendezvous sur le site web du projet APPS (https://www.patientpartner.org/). [less ▲]

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See detailAdolescent Body Dissatisfaction in ContrastingSocioeconomic Milieus, Coming from a French andLuxembourgish Context
Regnier, Faustine; Le Bihan, Etienne UL; Tichit, Christine et al

in International Journal of Environmental Research and Public Health (2020), 17(61),

: To analyze the relationships between body mass index (BMI), ideal body,current declared body shape, and gap between ideal and declared body shape, and the associationsthat these have with social and ... [more ▼]

: To analyze the relationships between body mass index (BMI), ideal body,current declared body shape, and gap between ideal and declared body shape, and the associationsthat these have with social and cultural factors among 329 adolescents (11 to 15 years i.e., at two stagesof adolescence, the early and late adolescence), attending an international school in Luxembourg,and 281 from Paris.Methods:A cross-sectional survey was conducted using an online questionnaire.Missing data were addressed using the data augmentation method in a Bayesian framework.Results: For both sets, higher the BMI and bigger their current body shape (CBS), the slimmertheir ideal body shape, especially for those who perceive a link between body shape and beauty.For girls, slimness is a shared ideal; for boys, older they are, more they want a muscular body shape.Most students want slimmer bodies, but in affluent or intermediate social milieu students in relationsto identification to personalities such as celebrities, while students from modest milieus, this isexpressed in relation to success in love. In addition, they declared that their “talk diet with friends”were associated with large gap between ideal and declared body shape.Conclusions:A social controlnorm was revealed involving a displacement of values affecting body weight and health in the latestage of adolescence to early adolescence, especially for boys. [less ▲]

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See detailMieux situer la place de l’Approche Patient Partenaire de Soins en Grande Région
Petré, Benoit; Baumann, Michèle UL; Odero, Angela UL

Book published by Elsevier (2020)

Nos résultats appellent également à un développement de la culture de l’approche patient-partenaire de soins. Même si ce genre de démarche, favorisant l’implication du patient, est recommandé depuis de ... [more ▼]

Nos résultats appellent également à un développement de la culture de l’approche patient-partenaire de soins. Même si ce genre de démarche, favorisant l’implication du patient, est recommandé depuis de nombreuses années, c’est tout le paradigme de l’organisation des systèmes de santé qui doit évoluer en parallèle à l’évolution des besoins sanitaires. Ce paradigme touche aux valeurs, aux représentations de ce que constitue l’acte même de soigner. L’exploration menée auprès des professionnels de santé et des patients révèle des envies d’évolution des pratiques de soins et de la relation soignant-soigné. Cependant, ces volontés sont freinées par des ambiguïtés sur le concept même du patient-partenaire de soins, une connaissance et des compétences limitées en matière d’approche patient-partenaire de soins et des éléments de contexte de travail qui rendent cette évolution impossible. Le point positif est la mise en évidence d’une volonté commune d’évoluer vers un patient plus acteur dans les soins, plus autonome, avec une série d’avantages perçus. On peut dire qu’il existe un décalage important entre la vision souhaitée et ce qui est actuellement possible. Notre projet a permis d’observer une volonté affichée d’évoluer vers davantage d’engagement du patient dans la relation de soin et dans les structures de soins de santé. Le développement attendu passera par une approche systémique de l’engagement tant sur des aspects micro (de la relation de soin) méso (dans la coordination des structures de soins) et macro (avec l’engagement des politiques de santé). Le développement doit s’appuyer sur les initiatives existantes : en ce sens le projet Interreg est une belle façon de promouvoir les échanges de bonnes pratiques au service de cet engagement du patient. [less ▲]

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See detailCore Values that Influence the Patient—Healthcare Professional Power Dynamic: Steering Interaction towards Partnership
Odero, Angela UL; Pongy, Manon UL; Chauvel, Louis UL et al

in International Journal of Environmental Research and Public Health (2020), 7(8458),

Healthcare has long been marked by the authoritative-physician–passive-patient interaction, with patients seeking help and physicians seeking to restore patients back to health. However, lobalisation ... [more ▼]

Healthcare has long been marked by the authoritative-physician–passive-patient interaction, with patients seeking help and physicians seeking to restore patients back to health. However, lobalisation, social movements, and technological advancements are transforming the nature of this relationship. We aim to identify core values that influence the power dynamic betweenpatients and healthcare professionals, and determine how to steer these interactions towards partnership, a more suitable approach to current healthcare needs. Patients with physical chronic diseases (10 men, 18 women) and healthcare professionals (11 men, 12 women) were interviewed, sessions transcribed, and the framework method used to thematically analyse the data. Validation was done through analyst triangulation and member check recheck. Core values identified as influencing the patient-healthcare professional power dynamic include: (A) values that empower patients (acceptance of diagnosis and autonomy); (B) values unique to healthcare professionals (HCPs) (acknowledging patients experiential knowledge and including patients in the therapeutic process); and (C) shared capitals related to their interactions (communication, information sharing and exchange, collaboration, and mutual commitment). These interdependent core values can be considered prerequisites to the implementation of the patient-as-partner approach in healthcare. Partnership would imply a paradigm shift such that stakeholders systematically examine each other’s perspective, motivations, capabilities, and goals, and then adapt their interactions in this accord, for optimal outcome. [less ▲]

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See detailHospital practices for the implementation of patient partnership in a multi-national European region
Scholtes, Beatrice; Breinbauer, Mareike; Voyen, Madeline et al

in European Journal of Public Health (2020)

The extent to which patients are involved in their care can be influenced by hospital policies and interventions. Nevertheless, the implementation of patient participation and involvement (PPI) at the ... [more ▼]

The extent to which patients are involved in their care can be influenced by hospital policies and interventions. Nevertheless, the implementation of patient participation and involvement (PPI) at the organisational (meso) level has rarely been assessed systematically. The aim of this study was to assess the occurrence of PPI practises in hospitals in Belgium, France, Germany and Luxembourg and to analyze if, and to what extent, the hospital vision and the presence of a patient committee influence the implementation of PPI practises. Methods: A cross-sectional study was carried out using an online questionnaire in hospitals in the border regions of the four countries. The data were analyzed for differences between regions and the maturity of PPI development. Results: Full responses were obtained from 64 hospitals. A wide range of practices were observed, the degree of maturity was mixed. A majority of hospitals promoted patient partnership in the hospital's philosophy of care statement. However, the implementation of specific interventions for PPI was not found uniformly and differences could be observed between the countries. Conclusions: Hospitals in the region seem to be motivated to include patients more fully, however, implementation of PPI interventions seems incomplete and only partially integrated into the general functioning of the hospitals. The implementation of the concept seems to be more mature in the francophone part of the region perhaps due, in part, to a more favourable political context. [less ▲]

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See detailThe patients’ perspective on access to and use of Personal Health Records
Paccoud, Ivana UL; Baumann, Michèle UL; Le Bihan, Etienne UL et al

Scientific Conference (2020)

We present the patients' perspective regarding the use of Personal Health Records, and give insights on patients' characteristics, such as socioeconomic and behavioural factors, that are associated with ... [more ▼]

We present the patients' perspective regarding the use of Personal Health Records, and give insights on patients' characteristics, such as socioeconomic and behavioural factors, that are associated with the access to and use of Personal Health Records. The findings come from the INTERREG APPS project that investigated preferences for and intention to use Personal Health Records in four cross-border regions, in Lorraine/France, Luxembourg, Rhineland-Palatinate and Saarland/Germany, and Wallonia/Belgium. [less ▲]

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See detailLife Satisfaction and mobility: Their associations with career attitudes, and health-related factors among postgraduates having studied in universities intra EU and outside EU
Odero, Angela UL; Chauvel, Louis UL; Hartung, Anne UL et al

in BMC Public Health (2020), 20(3),

Background. University postgraduates’ mobility towards, and outside the EU is continuously increasing, creating a competitive context in which maintaining a high life satisfaction (LS) is a public health ... [more ▼]

Background. University postgraduates’ mobility towards, and outside the EU is continuously increasing, creating a competitive context in which maintaining a high life satisfaction (LS) is a public health challenge. However, the relationship between LS and its determinants among this population are under-documented. Our aims were to measure LS indicators of mobile postgraduates (Intra EU: Who pursue part of their studies in Europe; Outside EU: Who study outside of Europe) versus non-mobile (pursue their studies in Luxembourg), and to analyze the associations between LS and career attitudes, socioeconomic characteristics, and health-related factors for each group. Method. Six hundred and sixty-four (644) students obtained financial aid from the Luxembourgish government independent of their family’s socioeconomic situation. Contacted by post, they completed an online questionnaire. Analyses included a multiple linear regression model in which only significant relationships (p < 0.05) were used. Results.Three groups were created: Mobile intra EU (n = 381), mobile outside EU (n = 43) and non-mobile (n = 66) postgraduates. Health satisfaction was positively linked to LS, in all groups. Among the mobile outside EU group, majority (63.2%) were men and 57.9% did not live alone - health was the only determinant which contributed to their LS. Among the mobile intra EU, majority (57.8%) were women, and 64.3% not living alone. Autonomy and career adaptability attitudes were positively associated with their LS (b: 0.210 and 0.119, respectively), whereas the worry factor was negatively (b: − 0.153 and -0.159) associated. The non-mobile, were the oldest of the three groups. Majority (51.6%) were women, and 93.7% did not live alone. Career optimism and planning attitudes were positively correlated to their LS (regression parameter estimates (b: 0.400 and 0.212, respectively). Conclusions.Attention should be devoted to the LS of local and cosmopolitan students, as it seems to be a relevant health indicator. Overall, the farther the mobility was, the higher the postgraduates’ general LS (8.5/10) was; this indicator was higher than the LS indicator for the age group 25–34 years 7.53/10 (EU-28, in 2013). University’ services could promote the development of career projects and the promotion of health to enhance postgraduates’ LS. University policy makers need to ensure this for all students. [less ▲]

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See detailEmotional and social repercussions of stroke on patient-family caregiver dyads: Analysis of diverging attitudes and profiles of the differing dyads
Bucki, Barbara; Spitz, Elisabeth; Baumann, Michèle UL

in PLoS ONE (2019), 14(4), 0215425

For patients, the social and emotional repercussions of stroke include shame, personality changes, and upheavals experienced by the couple (i.e. patient and main family caregiver). These impacts on the ... [more ▼]

For patients, the social and emotional repercussions of stroke include shame, personality changes, and upheavals experienced by the couple (i.e. patient and main family caregiver). These impacts on the couple ‘patient/family caregiver’ are scarcely documented. Focusing on the perceptions of the patients and the family caregivers living at home, two years after a stroke occurrence, the aims of the study were to analyse the concordance of attitudes towards the emotional and social repercussions of stroke and to determine the profiles of the differing dyads. Two researchers conducted separate face-to-face structured interviews with stroke survivors and their family caregivers. Eleven items, identified through a content analysis of interviews and after a qualitative process of generating questionnaire items, assessed the commonly experienced impact of stroke on the family, the social repercussions of stroke, and its emotional effects on the stroke survivors. The kappa concordance coefficient was used to determine the response convergence between patients and family caregivers. Four items, selected by a panel of experts, were included in logistic regressions (i.e., demographic characteristics and patients’ impaired functions) to identify the differing dyadic profiles. Family caregivers’ and patients’ attitudes towards the social repercussions of stroke were similar. Patients with motor deficiencies tended to underestimate the upheaval brought to their couple by stroke, whereas caregivers of language-impaired patients tended to underestimate their feelings of shame and demeaning. Communication disturbances, but also residual physical disabilities in stroke survivors, may affect the understanding of each other’s attitudes within dyads. In order to avoid dysfunctional relationships between family caregivers and patients, healthcare professionals need to pay special attention to this issue, especially in cases of aphasia and motor deficiencies. [less ▲]

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See detailThe Generation of suffering related items: A process integrating consensus experts and Sorensen’s similarity analysis.
Bustan, Smadar; Anton, Fernand; Odero, Angela UL et al

in 33 nd Annual Conference on the European Health Psychology Society. Methodology.Publisher: EHPS (2019)

Health psychology and public health aspire to find ways for evaluating the suffering of patients. Quantitative assessment of pain-related suffering exists, but methodological frameworks implying ... [more ▼]

Health psychology and public health aspire to find ways for evaluating the suffering of patients. Quantitative assessment of pain-related suffering exists, but methodological frameworks implying qualitative approach based on a direct communication with participants are missing. Our aim was to analyse the procedure generating pain and suffering-related items and explore the validity of their content. Volunteers were all right-handed and of European origin. After received information concerning the aims of the study, they signed a consent to accept the experimental pain stimulation protocols and to receive financial compensation. Descriptors of pain-related suffering were gathered through 106 semi-structured interviews of 31 particpants (16 men ;15 women), age 18-33 years. A thematic categorical content analysis on the transcriptions was conducted. Verbatim were extracted and classified under categories. Cluster analysis on word of verbatim using the index of Sorensen was performed with N’Vivo12. The content of each category was validated through consensus by multidisciplinary experts (some have lived the experimental pain stimulation). Then they formulated 70 items to capture the overall pain-related suffering experience. In accordance to theories and with the help of the Sorensen’s similarity analysis, a conceptual framework with different dimensions (physical, mental, etc.) has been discussed and elaborated. The list obtained constitutes a first classification for laboratory use and a basis for the development of a routine clinical suffering assessment tool. This generation process should guarantee that the items are acceptable, comprehensive and relevant (reflecting the lived experience of the participants) ensuring a content validity of the future questionnaire [less ▲]

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See detailOptimisation de la prise en charge médicale des patients sortant de prison au Luxembourg
Battista, Jorge; Stein, Romain; Baumann, Michèle UL

Poster (2019)

Le passage en prison peut être un gain de chance pour la santé de la population carcérale qui a généralement un faible accès au système de soins. L’élargissement de prison peut devenir une période de ... [more ▼]

Le passage en prison peut être un gain de chance pour la santé de la population carcérale qui a généralement un faible accès au système de soins. L’élargissement de prison peut devenir une période de vulnérabilité où ce gain potentiellement acquis s’annule si la transition vers la société civile n’est pas anticipée. L’objectif principal était l’identification et l’analyse des facteurs qui favorisent et s’opposent à une pratique de soins primaires chez les patients sortant du milieu carcéral au Luxembourg. L’objectif secondaire était l’élaboration de recommandations à l’égard des principaux résultats en s’appuyant sur une revue de la littérature. Méthodes : Une enquête qualitative à l’aide d’entretiens semi-dirigés a été menée auprès de médecins généralistes et de patients-détenus. Les questions des deux guides d’entretien étaient semblables afin que l’analyse permette une mise en miroir des résultats. Un recueil des caractéristiques sociodémographiques a également été effectué. A l’aide de la transcription des entretiens, une analyse de contenu thématique catégorielle de ces derniers a été réalisée au regard des objectifs. Sur base des verbatim, des items ont été formulés et regroupés en dimensions puis en thèmes. Résultats : Notre analyse a mis en lumière le manque de relais entre la prison et l’extérieur à chaque étape de la prise en charge médico-psycho-sociale du point de vue des soins et des aides proposées en prison jusqu’à l’élargissement. Des recommandations concernant des améliorations possibles ont pu être proposées, comme la création d’un réseau de médecins généralistes prenant le relais ainsi qu’une véritable coopération avec des organisations prenant en charge des toxicomanes. Conclusion : Des reformes concernant les soins en prison devraient être envisagées entre le système de l’élargissement, la création de relais socio-médicaux et des alternatives à l’incarcération, en analogie aux transitions clinics retrouvés aux États-Unis. [less ▲]

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See detail“Patient participation” and related concepts: A scoping review on their dimensional
Ortiz Halabi, Iness; Scholtes, Beatrice; Voz, Berarrd et al

in Patient Education and Counseling (2019)

Several concepts on collaboration between patients and healthcare systems have emerged in the literature but there is little consensus on their meanings and differences. In this study, “patient ... [more ▼]

Several concepts on collaboration between patients and healthcare systems have emerged in the literature but there is little consensus on their meanings and differences. In this study, “patient participation” and related concepts were studied by focusing on the dimensions that compose them. This review follows two objectives: (1) to produce a detailed and comprehensive overview of the “patient participation” dimensions; (2) to identify differences and similarities between the related concepts. Methods; A scoping review was performed to synthesize knowledge into a conceptual framework. An electronic protocol driven search was conducted in two bibliographic databases and a thematic analysis was used to analyse the data. Results. The search process returned 39 articles after exclusion for full data extraction and analysis. Through the thematic analysis, the dimensions, influencing factors and expected outcomes of “patient participation” were determined. Finally, differences between the included concepts were identified. Conclusion. This global vision of “patient participation” allows us to go beyond the distinctions between the existing concepts and reveals their common goal to include the patient in the healthcare system. Practice implications. This scoping review provides useful information to propose a conceptual model of “patient participation”, which could impact clinical practice and medical training programs. [less ▲]

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See detailResources and Competences required at the Institutional Level for a Patient – Healthcare Professional Partnership
Odero, Angela UL; Baumann, Michèle UL

in Conference Handbook EHPS : Individuals and Professionals Cooperation to health (2019)

Societal changes have catalyzed the perception of health as a personal responsibility, with social studies showing a behavioral trend where patients are increasingly seeking health information. This has ... [more ▼]

Societal changes have catalyzed the perception of health as a personal responsibility, with social studies showing a behavioral trend where patients are increasingly seeking health information. This has given rise to patients who are active players in their care, and participate in decision-making. Central to these changes, are patients and healthcare professionals’, whose backgrounds and experiences reflect both cultural factors that influence health decisions, and a power shift from professional dominance to a more equitable partnership style. Our study aims to determine resources and competences required at the institutional level to implementing a partnership Semi-structured focus groups with 20 chronic disease patients and interviews with 15 healthcare professionals were conducted. Thematic content analysis was performed with NVivo 12 to categorize verbatim. Items were grouped into dimensions, and themes common to both parties were grouped together. Three major areas emerged: 1) Training to develop a partnership culture - Training healthcare professionals in patient psychology, developing therapeutic education programs for patients and enriching available information with patients’ experiential knowledge. 2) Creation of information / support centers for: Interdisciplinary meetings, facilitating the provision of structured, verified and pertinent information and providing administrative aid to patients. 3) Development of e-health solutions to: Provide information 24/7; facilitate collaborative content creation by healthcare professionals, patients and researchers, and for sharing and updating patient files among professionals. Our findings will help design, implement, monitor and evaluate suitable actions, and help promote sustainable forms of expertise – inclusion of experiential knowledge and resource patients within the healthcare team [less ▲]

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See detail“Patient participation” and related concepts: a scoping literature review on their dimensional composition
Ortiz Halabi; Baumann, Michèle UL; Odero, Angela UL

in Archives of Public Health (2019), 77(suppl 1), 7

The Greater Region (GR) is Europe’s cross-border region including Lorraine, Luxembourg, Rhineland-Palatinate, Saarland and Wallonia. These regions share a consortium founded by five Univer sities. In the ... [more ▼]

The Greater Region (GR) is Europe’s cross-border region including Lorraine, Luxembourg, Rhineland-Palatinate, Saarland and Wallonia. These regions share a consortium founded by five Univer sities. In the GR, emergency initial training for polytrauma patients’ management is heterogeneous. Moreover, learners encounter diffi culties in acquiring knowledge and skills on trauma due to case limi tations. This lack of experience can lead to adverse events and care errors. Lastly, WHO requests that states of the European Union intro duce training in prehospital trauma care. Consequently, the five uni versities are designing a common competency framework to define technical and non-technical skills needed to manage polytrauma patients. Methods: To design this competency framework, several steps have been planned: 1) a literature review on Medline Databases and CINAHL using key words related to training and polytrauma manage ment, and consultation of reference books; 2) a first proposal of com mon frame; 3) face-to-face and experts’ meetings; and 4) a Delphimethod to finalise and validate the framework. The first two havealready been carried out. Results: The literature review allowed selecting two books and 23 arti cles. The first proposal of competency framework is divided into three parts. The first part presents prerequisite knowledge and skills of the emergency physicians. The second part describes the rational of the frame, and essential concepts as the Golden hour6 and a timeline forolytrauma patients’ management. The last part describes seven med ical skills using CanMEDS system presented in two sections: five Non Technical Skills (Professional attitude, Long-life learning, Communicator,Collaborator and Leader), and several Technical Skills to use during Pre hospital phase and In-hospital phase. Conclusions: Designing a common framework for polytrauma pa tients’ management in the GR is the first step of an Interreg project. Based on CanMEDS system, seven skills have been defined. A Delphi method will validate this proposal. [less ▲]

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See detailGeneration of Patients-as-Partner Items Through a Qualitative Data Analysis : Initial Item Reduction
Odero, Angela UL; Baumann, Michèle UL

in Conference Handbook EHPS : Individuals and Professionals Cooperation to health (2019)

Health psychology aspires to find ways for evaluating the Patient as a Partner. The Montréal model, proposes a verbal and conceptual interpretation. Developed by a University of Montréal research team ... [more ▼]

Health psychology aspires to find ways for evaluating the Patient as a Partner. The Montréal model, proposes a verbal and conceptual interpretation. Developed by a University of Montréal research team, this approach advances that patients should play an active role in the healthcare process. Quantitative assessments employing a methodological framework involving a qualitative approach do not exist. Our study aimed at analyzing a procedure for generating patient as a partner related items and to elaborate their classification. Five semi-structured focus groups with 20 chronic disease patients and 15 professionals (doctors, nurses) were conducted. A qualitative analysis, combining inductive (data abstraction was conducted from specific to general), and deductive (guided by a predefined protocol) methods was employed to create a flexible framework of analysis. A thematic categorical content analysis of the transcriptions was conducted. Verbatim were extracted and classified into categories. Cluster analysis using Sorensen’s coeffient was performed with the software N’Vivo 12. Sorensen’s similarity analysis helped to structure a conceptual framework for the assessment of patient as partner at the doctor patient interaction level. The content of each category was verfied through consensus by multidisciplinary experts, who formulated items to capture the overall patient as partner experience. Our list of items constituted fundamental dimensions of partnership, constituting a first classification and a basis for the development of a routine clinical assessment tool. This process should guarantee that the items are acceptable, comprehensive and relevant (reflecting the lived experience of the participants) ensuring a validity of the future questionnaire. [less ▲]

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See detailOptimising patients’ medical care after prison in Luxembourg
Batista, Jorge; Stein, Romain; Baumann, Michèle UL

in General Practice : The human side of medicine (2019)

Introduction : Passing through prison can be a health gain for the incarcerated population and release from prison can become a period of vulnerability where this potentially acquired gain is lost if the ... [more ▼]

Introduction : Passing through prison can be a health gain for the incarcerated population and release from prison can become a period of vulnerability where this potentially acquired gain is lost if the transition back to civil society in not anticipated. The main objective was the identification and analysis of the factors favor and oppose primary care practice for patients leaving prison in Luxembourg. The secondary objective was to develop recommendations based on the key findings through a literature’s review. Methods : A qualitative study using semi-structured interviews was conducted with general practitioners and patient-inmates. The questions from the two interview guides were similar so that the analysis allowed the results to be mirrored. Using the interviews’ transcripts, a categorical thematic content analysis of those was conducted based on the objectives. On the basis of verbatim, items were formulated and grouped into dimensions and then themes. Results : Our analysis has highlighted the lack of links between the prison and the outside world at each stage of medical and psychosocial care from the point of view of care and support proposed in prison until prison release. Recommendations for doable improvements have been proposed, such as the creation of a general practitioners’ network continuing the medical care as well as genuine cooperation with organisations dealing with drug addicts. Conclusion : Reforms concerning prison care should be considered between the system of prison release, the creation of socio-medical relays and alternatives to incarceration, in analogy to the transitions clinics found in the United States [less ▲]

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