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See detailQuality of doctor-patient communication in cardiovascular diseases and secondary preventive adherence. The role of gender
Bucki, Barbara UL; Le Bihan, Etienne UL; Baumann, Michèle UL

in Innovative ideas in Health Psychology (2017)

The doctor-patient communication intervenes on the preventive behaviours of chronic patients by reducing their risk factors – in cardiovascular diseases: hypertension, overweight, obesity ... [more ▼]

The doctor-patient communication intervenes on the preventive behaviours of chronic patients by reducing their risk factors – in cardiovascular diseases: hypertension, overweight, obesity, hypercholesterolemia, diabetes. What are the associations between the quality of communication and the improvement of secondary preventive behaviours? How does gender influence these relationships? Methods: 1,289 patients who underwent a coronary angiography in 2008/09 in Luxembourg completed a self-administered questionnaire at the time of the visit, and at a five-year follow-up. The probability of improving each preventive eating behaviour (decrease of salt, sugar, fat consumption and increase of fruits/vegetables), and the quality of doctor-patient communication (5-item scale) were evaluated using logistic regression models. Sex was introduced in interaction with the communication score. Findings: Among hypertensive respondents, a higher quality of communication was associated with a higher probability of decreasing the salt intake in women (OR [95% CI]: 1.139 [1.060; 1.223]) whereas in men, the OR was only 1.086 [1.017; 1.159]. ORs were also higher in women among patients with hypertension, overweight and hypercholesterolemia regarding the increase of fruits/vegetables consumption; among patients with diabetes and hypercholesterolemia regarding sugar decrease or cessation; and among patients with overweight and hypercholesterolemia regarding fat reduction or stop. ORs were slightly higher among men only among diabetic and obese patients, regarding the increase of fruits/vegetables consumption. Discussion: The quality of the communication showed an effect on the adoption of secondary preventive eating behaviours, especially in women patients. Motivational interviews could encourage, especially men patients, to adhere to the recommendations about lifestyle change. [less ▲]

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See detailHealth capability of family caregivers: how different factors interrelate and their respective contributions using a Bayesian approach
Bucki, Barbara UL; Le Bihan, Etienne UL; Baumann, Michèle UL

in BMC Public Health (2016), 16

The lifestyles of family caregivers pose risks to their physical, mental and social health. The capability to stay healthy may be protective in the context of poor socioeconomic conditions and risk ... [more ▼]

The lifestyles of family caregivers pose risks to their physical, mental and social health. The capability to stay healthy may be protective in the context of poor socioeconomic conditions and risk behaviours, but the interrelations between its aspects and their respective influences remain unclear. The aim of this study was to evaluate the interrelations between the factors comprising health capability of family caregivers (HCFC) and the respective contributions of its components. Methods: All stroke patients admitted to all hospitals in Luxembourg were identified by the ‘Inspection Générale de la Sécurité Sociale’ using the national database system for care expenditure reimbursement, and asked to designate the main person caring for them. Sixty-two caregivers (mean age 59.3 years; 40 women and 22 men) responded face to face, to a questionnaire including 20 items measuring eight aspects of health capability (physical functioning, psychological functioning, lifestyle value, self-efficacy towards the use of health services, family support, social capital, material conditions/sense of security, and satisfaction with the interactions with health services). Using a Bayesian approach, significance values were estimated by comparing the test values to the posterior distribution of the parameters. Structural equation modelling with standard deviations was applied. Results: Female family caregivers had lower scores than men in physical and psychological functioning. Family caregivers with the lowest incomes had the least lifestyle value, social capital and material conditions/security. Self-efficacy towards health services increased with age. The material conditions/sense of security factor was positively correlated with almost all the others. The items that impacted health capability factors the most were - for physical functioning – fatigue, and - for family support - feeling abandoned by the family. Conclusions: During the chronic phase, relationships between risk behaviours can help guide social and health decision-makers to determine their priorities in improving the lives of family caregivers. Enhancing health capability involves implementing programs that relieve family caregivers physically, and foster family networking around the person being cared for. Special attention should also be paid to the socially disadvantaged in order to fight inequalities in health capability. [less ▲]

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See detailStudents’ Well-being: Impacts of studying out-EU and perceived autonomy on the Psychological Quality of Life
Bucki, Barbara UL; Karavdic, Senad UL; Karathanasi, Chrysoula UL et al

in European Health Psychologist (The) (2015), special

Introduction: With an increasing number of university students in preparation of their entrance in the labor market, the wellbeing of the postgraduates became a priority for many universities. Despite ... [more ▼]

Introduction: With an increasing number of university students in preparation of their entrance in the labor market, the wellbeing of the postgraduates became a priority for many universities. Despite numerous studies on this topic, respective relationships of wellbeing and other psychosocial factors still remain unclear. Aims: (1) to assess Psychological Quality of Life of postgraduates who study in Grand Duchy of Luxembourg (GDL), EU and non – EU countries; (2) to analyze its associations with their socio-economic,health and employability related cofactors. Method: All masters’ students registered at the Centre for Documentation and Information on Higher Education (CEDIES) database in GDL were contacted by mail to participate at an online questionnaire (in English or French) measuring: 1. Psychological Whoqol-bref (6 items) (dependent variable) 2. Wellbeing attributes: Quality of Life Autonomy, Health Satisfaction, and Penn state worry questionnaire (Worries). 3. Employability attributes: Search for Work Self Efficacy scale (SWSES), Career Goals setting. 4. Perceived financial situation and socio-demographic characteristics. Respondents who did not mention the country of their studies were excluded from the analysis. Bivariate tests and correlations were performed for association analyses between the variables. Only significant relationships (p<0.05) were used in the multiple linear model. Results: 490 participants were volunteers from which 13.5% study in Luxembourg, 77.8% in an EU country and 8.7% in a non EU country. Majority were women, with exception for those studying in non-EU countries who were mainly men. Participants studying in GDL were older than those studying abroad. Natives of Luxembourg were prevalent with higher percentages among those who study in a non EU-country. Those studying in non-EU showed significantly (p<0.05) higher Psychological Quality of Life (M=76.8; SD=12.8) than those in GDL (M=74.5;SD=12.6) respectively in EU (M=71.4; SD=15.3). While participants differ in their QoL-Autonomy score there isn’t any significant difference in their career goals setting, Search for work self efficacy, Health satisfaction, Worries and Perceived financial situation across the country of study.Conclusion: Better psychological quality of life mobilized the capability of students to study abroad, which is related to better wellbeing attributes. However this relationship remains true only for students studying in Non-EU countries. Implementing workshops to increase individual self-efficacy towards a future employment may improve and/or maintain wellbeing of academics and limit so, respective social inequalities. [less ▲]

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See detailDes souffrances multiples à la souffrance paroxystique.
Karavdic, Senad UL; Bucki, Barbara UL; Baumann, Michèle UL

in Pensée plurielle (2015), 2015/1(N°38), 9-22

The purpose of our study is to contribute to the understanding of the mechanisms playing a role in the deconstruction of mental suffering. With the support of the Luxembourgish RE.SO.NORD (REseau du ... [more ▼]

The purpose of our study is to contribute to the understanding of the mechanisms playing a role in the deconstruction of mental suffering. With the support of the Luxembourgish RE.SO.NORD (REseau du centre SOcial de la région du NORD), a diagnosis of the sufferings of people living in rural districts was completed with the first-line health and social professionals who work with their clients on a daily basis. Twenty-six professionals participated in interviews during which they described the sufferings of their clients. They appeared as the effects of a drift and show how the amplification process of psychic sufferings (permanent anxiety, depression, etc.) and the accumulation of social and family factors (job loss, family separation, etc.) can lead to the emergence of critical mental health conditions. In this logic of paroxystic gradation, mental health problems may aggregate a set of harmful behaviors. This gradation illustrates the state achieved by the clients when their intimate and social domains of life are impeded. The paroxystic suffering represents the state during which the individual seems to fail to cope with their sufferings and is no longer able to recover. The professionals recognize a lack of information and incentive during medical consultation in which their clients dread the fear of being stigmatized. They admit the existence of poor coordination and access to primary health care and a lack of support for those who suffer and their family caregivers in order to prepare them to become actors that can mobilize their "health capability". [less ▲]

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See detailWhy medication or tobacco consumption enhance the life satisfaction of cardiovascular patients?
Bucki, Barbara UL; Tchicaya, Anastase; Baumann, Michèle UL

in European Health Psychologist (The) (2015), special

While life satisfaction (LS) promotes the health of cardiovascular patients, LS may be affected by a range of primary and secondary determinants. We analysed LS and its relationships with cardiovascular ... [more ▼]

While life satisfaction (LS) promotes the health of cardiovascular patients, LS may be affected by a range of primary and secondary determinants. We analysed LS and its relationships with cardiovascular risk factors and unhealthy behaviours. Methods. In 2013, 3,632 survivors who underwent coronary angiography in 2008-2009 at the Luxembourgish National Institute of Cardiac Surgery and Cardiological Intervention (INCCI), living at home were asked to estimate, five years after, their LS [1-10] and other health-related variables. Data were analysed via multiple regression models including interaction effects. Findings. LS of the 1,289 participants (age: 69.2±11.1) was 7.3/10. Most were men, employees or manual workers, had secondary education and a 36,000€ or more/year income. The interactions between hypercholesterolemia and hypertension (regression coefficient= 0.628) and with smoking (rc= 0.941) were positively related with LS, but physical inactivity was negatively associated (rc= -0.630). Discussion. Taking medications or maintaining tobacco consumption produces better LS than being ambivalent towards physical activity. Further research is needed to evaluate the efficacy of health interventions eliciting and promoting the behaviour change wheel based on capabilities, opportunities, and motivations. [less ▲]

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See detailHealth capability: An attempt to clarify an alternative approach for health sociology
Bucki, Barbara UL

in Analele Stiintifice ale Universitatii "Alexandru Ioan Cuza". Sectiunea Sociologie si Asistenta Sociala = Scientific Annals of the “Alexandru Ioan Cuza” University. Sociology and Social Work Section (2014), 7(1), 19-31

Understanding health is a major issue for humanities and social sciences. As its traditional definition dates back to 1948, there is a need to rethink this concept. The capability approach questions what ... [more ▼]

Understanding health is a major issue for humanities and social sciences. As its traditional definition dates back to 1948, there is a need to rethink this concept. The capability approach questions what people are actually able to do and be given their real opportunities. In the domain of health, researchers in health ethics and health economics have begun to take a capability approach to study the capacity to make informed choices, or to find broader indicators for the economic evaluation of health interventions. Finally, the recent « Health Capability Paradigm » (Ruger 2010) draws on the philosophical, political and economic theories which have attempted to uncover the dimensions which underlie the capability to achieve a state of optimal health. Paradoxically, despite the undeniable importance of this concept, no research has enabled its operationalization. Our aims are to present the capability approach by describing its general principles, describe a selection of studies based on this approach in the domain of health, analyse Ruger’s Health Capability Paradigm and suggest possible research perspectives to this paradigm. [less ▲]

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See detailLa capabilité de santé des aidants familiaux: Analyses du paradigme et pistes d'opérationnalisation
Bucki, Barbara UL

Doctoral thesis (2014)

Home care of persons with a chronic disease is increasingly provided by family caregivers, but their lifestyle creates a risk to their health. Therefore, leading a research on their "health capability ... [more ▼]

Home care of persons with a chronic disease is increasingly provided by family caregivers, but their lifestyle creates a risk to their health. Therefore, leading a research on their "health capability", in other words, on their ability to adopt a healthy lifestyle is of major scientific interest. The operationalization of this paradigm, developed by Ruger in 2010 to understand the factors of maintaining a state of optimal health, has been the heart of our research. Based on a quantitative data collection conducted in Luxembourg and Lorraine (France), a Health Capability of Family Caregivers instrument (HCFC-20 items) was developed and tested. It explores eight areas: physical health, psychological health, lifestyle value, sense of self-efficacy, family support, social capital, material conditions/sense of security, satisfaction with information and healthcare services. Additional qualitative surveys have completed the HCFC-20 with 77 items covering areas such as motivation, life skills and coping styles. This instrument allows to develop personalized diagnoses and to evaluate health-promoting programs. Our preliminary analyses have also indicated that the impacts of a chronic disease are experienced jointly in patient-caregiver dyads; and the value placed on the role of caregiver is encouraged by the support from professionals and a social network. In order to improve the health capability of caregivers, taking into account both their autonomy and their need for support is therefore required. [less ▲]

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See detailFamily caregivers’ health capability: Contribution of, and relations between its dimensions
Bucki, Barbara UL; Baumann, Michèle UL

in European Health Psychologist (The) (2014)

Background. Being family caregiver poses certain risks for physical, mental and social health. The health capability paradigm (Ruger, 2010) explores the capacity to achieve one’s optimal health. Family ... [more ▼]

Background. Being family caregiver poses certain risks for physical, mental and social health. The health capability paradigm (Ruger, 2010) explores the capacity to achieve one’s optimal health. Family caregivers’ health capability partly consists of 8 dimensions: physical and psychological functioning, lifestyle value, self-efficacy, family support, social capital, socio-economic conditions and access to health services. Which relations exist between these dimensions, and which ones contribute the most to health capability? Methods. Home-based structured interviews were led among 62 family caregivers living in Luxembourg 2 years after their relatives’ stroke. Twenty items measured the 8 dimensions of health capability. Using a Bayesian approach, a structural equation modelling was applied. Findings. Socio-economic conditions were positively correlated with all the other dimensions. Family caregivers’ fatigue and feeling abandoned by their families impeded their health capability the most. Discussion. Enhancing family caregivers’ well-being involves finding interventions relieving them physically and fostering family networking around the ill, giving priority to the socially disadvantaged. [less ▲]

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See detailBreaking bad news in different medical conditions : exploring the physicians and patients perspectives
Muller, Laurent; Kretsch, Marina; Hannachi, Nawel et al

in European Health Psychologist (The) (2014)

Background: We aim to explore factors influencing the breaking bad news process in different medical contexts with irreversible conditions (others than cancer). Methods: 23 patients and 18 physicians ... [more ▼]

Background: We aim to explore factors influencing the breaking bad news process in different medical contexts with irreversible conditions (others than cancer). Methods: 23 patients and 18 physicians concerned by different chronic diseases were interviewed by psychologists. They received/broke bad news in the few months preceding the interview. Findings: Thematic analysis of interviews allowed to identify higher-order themes, and more specific themes for both, patients and physicians. The main topics covered by physicians concerned the determinants of the strategies to communicate with patients, the encountered difficulties, the initial training, the information, interpersonal relationships, emotional reactions, perception of its role, the specifics of the disease. The discourse of patients referred to three stages including specifics topics: the communication of bad news, the health care pathways, and the life with disease. Discussion: Data analysis highlight importance of patient and physician’s profiles, and specifics of disease, in the breaking bad news process. Recommendations to build tailored intervention for physicians by using formative self-assessment will be exposed. [less ▲]

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See detailPhysical and mental health, substance abuse and preventive behaviour: disparities between Central/Eastern versus Western European first-year university students in social sciences
Ionescu, Ion; Bucki, Barbara UL; Baumann, Michèle UL

in Analele Stiintifice ale Universitatii "Alexandru Ioan Cuza". Sectiunea Sociologie si Asistenta Sociala = Scientific Annals of the “Alexandru Ioan Cuza” University. Sociology and Social Work Section (2014), 7(1), 96-115

Background: Students at many European universities are in poor health and have unhealthy lifestyles. This study assessed and compared physical and mental health, substance use and preventive behaviour ... [more ▼]

Background: Students at many European universities are in poor health and have unhealthy lifestyles. This study assessed and compared physical and mental health, substance use and preventive behaviour among Polish and Romanian students versus students from France, a longer-standing member of the European Union. Methods: Four months after the beginning of the academic year, 934 French (Metz), 480 Polish (Katowice), and 195 Romanian (Iasi) first-year students of human and social sciences volunteered to complete an online self-reported questionnaire in their native language. The data were analysed using the age and sex adjusted odds ratios (OR) computed with logistic models and analysis of variance controlling for age and sex. Results: 41.9% of French students, 79.2% of Polish students and 48.2% of Romanian students were aged 20 years or over, and 58%, 82% and 87% respectively were female. Compared with French students, Romanian and Polish students experienced more stress/psychological distress, received less social support, and smokers smoked more intensively (ORs about 2.3). Drunkenness, impaired physical health or morale and suicidal ideation were more frequent (ORs 1.5-1.8) while tobacco use was less frequent (0.34) among Polish than among French students. Being uneasy, wanting to cry, having financial problems, and impaired physical health or morale were more frequent (ORs 1.5-4.9) among Romanian than among French students, in contrast to drunkenness (0.43). Both not using a motorcycle/cycle helmet and drink driving were less frequent among Polish students (ORs 0.06 and 0.47, respectively). Romanian students less frequently used tranquillisers (0.07) but were more likely not to use a condom during sexual intercourse (2.06). Finally, French students more frequently reported feeling isolated or dissatisfied with their integration into university. Conclusion: Poor health, substance use and lack of support were common but the risks greatly differed between Polish, Romanian and French students. There is a need to help students solve their integration problems and material difficulties. Health promotion on campus should provide appropriate advice, particularly for individuals at risk that takes account of the socio-economic and cultural context. [less ▲]

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See detailSocioeconomic inequalities in fatal opiate and cocaine related overdoses: Transgenerational baggage versus individual attainments
Origer, Alain UL; Bucki, Barbara UL; Baumann, Michèle UL

in European Health Psychologist (The) (2014)

Background. To determine socioeconomic inequalities in opiates and cocaine related Fatal OverDose (FOD) cases and their implications in terms of preventive measures. Methods. Cross-examination of law ... [more ▼]

Background. To determine socioeconomic inequalities in opiates and cocaine related Fatal OverDose (FOD) cases and their implications in terms of preventive measures. Methods. Cross-examination of law enforcement and healthcare data sources and of forensic evidence in a nested case-control study design. FOD cases were individually matched with 4 controls, according to sex, year of birth, drug administration route and duration of drug use. 272 cases vs. 1,056 controls were compared through conditional logistic regression. Findings. Being professionally active [OR=0.662 (95% CI 0.446–0.985)], reporting salary as main income source [OR=0.417 (95% CI 0.258–0.674)], and education attainment higher than primary school [OR=0.501 (95% CI 0.344-0.729)] revealed to be protective factors, whereas parental professional status was not associated to FOD. Discussion. Compared to their peers, drug users with lower socioeconomic profiles show increased odds of FOD. However, actual and self-referred socioeconomic characteristics of drug users, impacting on daily life quality, such as educational attainment, employment and revenue, appeared to be more predictive of FOD than transgenerational factors such as the parental socioeconomic status. Thus, motivational interventions aimed at socio-professional reintegration should be given due attention in dedicated harm prevention policies. [less ▲]

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See detailPrendre soin d'une victime d'AVC : réactions des aidants familiaux femmes et hommes
Bucki, Barbara UL

in Legrand, Monique; Voléry, Ingrid (Eds.) Genre et parcours de vie (2013)

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See detailLifestyle as a Health Risk for Family Caregivers with Least Life Satisfaction, in Home-Based Post-Stroke Caring
Baumann, Michèle UL; Bucki, Barbara UL

in Healthcare Policy (2013), 9

Our purpose was to clarify that the caregiving role respresent a situation of risk for the health of family caregivers in home-based caring two years after cerebrovascular disease. Our aim was to ... [more ▼]

Our purpose was to clarify that the caregiving role respresent a situation of risk for the health of family caregivers in home-based caring two years after cerebrovascular disease. Our aim was to determine the social and emotional repercussions of the event on family caregivers. Family caregivers living at home with stroke survivors were identified by a national survey. The Life Satisfaction (LS) national indicator for Luxembourg is 7.9/10, while in Canada it stands at 7.7. Caregivers with a LS level ≤ 7 were more likely to care for survivors affected by motor, sensory and memory neurological impairments. For a great majority, these impairments led to serious upheaval among families, and for spouses it was “a drama.” For family caregivers with a least life satisfaction, their lifestyle poses a real health risk. [less ▲]

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See detailHarmonie et divergences des couples sur les repercussions familiales et sociales apres la survenue d’un accident vasculaire cerebral.
Baumann, Michèle UL; Bucki, Barbara UL

in Analele Stiintifice ale Universitatii "Alexandru Ioan Cuza". Sectiunea Sociologie si Asistenta Sociala = Scientific Annals of the “Alexandru Ioan Cuza” University. Sociology and Social Work Section (2012), 5(1), 155-173

Deux ans après la survenue d’un accident vasculaire cérébral (AVC), l’harmonie et la divergence entre les déclarations des patients et des conjoints ont été analysées auprès de 51 couples vivant au ... [more ▼]

Deux ans après la survenue d’un accident vasculaire cérébral (AVC), l’harmonie et la divergence entre les déclarations des patients et des conjoints ont été analysées auprès de 51 couples vivant au Luxembourg à l’aide d’un entretien mené à leur domicile. « L’AVC a créé des bouleversements considérables dans ma famille » et « au début, personne ne savait quelle attitude avoir avec la personne AVC »; ces retentissements sont, pour les couples, indiscutables. D’autres effets les affectent: « le caractère de la personne AVC a changé complètement depuis son AVC », ils estiment que « c’est sur le plan psychologique que cela a été le plus difficile ». Malgré les changements intervenus, les voyages demeurent un sujet qui les mobilise. Les besoins « d’information concernant l’aide financière » et « d’aide pour faire des demandes administratives, d’allocations ou de services » sanitaires et socio-éducatifs sont des priorités communes. Ils sont attentifs au fait que « les services et l’équipement fournis soient de bonne qualité » et dispensés à « des moments de la journée qui conviennent ». Les personnes victimes d’un AVC sont plus nombreuses que leurs aidants à reconnaître que « lorsqu’on a un AVC, on se sent dévalorisé ». Cette différence entre les attitudes des patients et des conjoints est une forme de stigmatisation du handicap dont souffrent les victimes confrontées à une image qui n’est plus celle qu’ils avaient d’eux avant l’accident. Avec le vieillissement de la population, une conception de la prise en charge par couple devrait être pensée dans le cadre du maintien à domicile. De nouvelles perspectives de recherche en sociologie médicale pourraient être développées. [less ▲]

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See detailPatient-caregiver differences and dyad concordance towards psychosocial impacts of stroke
Bucki, Barbara UL; Baumann, Michèle UL

in Psychology & Health (2012), 27(suppl 1), 14

Are patient-caregiver dyads concordant when applying to stroke psychosocial impacts ? Methods: Two questionnaires administered two years poststroke in Luxemburg to 62 patients and their 62 natural ... [more ▼]

Are patient-caregiver dyads concordant when applying to stroke psychosocial impacts ? Methods: Two questionnaires administered two years poststroke in Luxemburg to 62 patients and their 62 natural caregivers include 15 common items assessing psychosocial impacts of stroke on both patients and caregivers. We (1) compare these impacts of stroke on patients and caregivers, and (2) use paired analysis of the concordance in responses within dyads. Findings: Patients feel ashamed, more often than caregivers imagine (11.3% vs. 3.2%*). Patients perceive less often than caregivers an upheaval in their couple (19.4% vs. 38.7%*), and preponderance of psychological difficulties (41.9% vs. 69.4%**). Loss of friends (90.7% convergent vs. 9.3% divergent*), social life (75% vs. 25%*) and family upheavals (76.8% vs. 23.2%*) are concordant subjects within dyads, contrary to feeling undervalued (62.8% vs. 37.2%; ns) and bonds’ strengthening (81.5% vs. 18.5%; ns). Discussion: Improving communication about feelings within patient-caregiver dyads may enhance their social capital as a health capability. [less ▲]

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See detailWhich Caregiving esteem for which Gender ?
Bucki, Barbara UL; Baumann, Michèle UL

in Psychology & Health (2012), 27(suppl 1), 170-171

Background: Two years after stroke, are the factors of the esteem of caregiving the same by gender? Methods: Face-to-face questionnaires administered to 92 Luxembourgish and Portuguese stroke patients and ... [more ▼]

Background: Two years after stroke, are the factors of the esteem of caregiving the same by gender? Methods: Face-to-face questionnaires administered to 92 Luxembourgish and Portuguese stroke patients and their 67 men and 25 women caregivers. For each sex, a multiple regression entering:- Neurological impairments,- Patients’ and caregivers’ life satisfaction [1;10],- Reactions towards caregiving: esteem (dependent variable), lack of family support, impacts on finances, schedule and health (Caregiver Reaction Assessment subscales),- Confidence in information subscale from the Carer Satisfaction Community Services. Results: Caregivers with a high caregiving esteem are, in women: those who trust information from community services ( ¼0.412***) and care for patients keeping few sensory impairments ( ¼0.300**; R2adj.¼0.257); in men : those who are low impacted on their health ( ¼0.471*) and care for patients satisfied with life ( ¼0.371; R2adj.¼0.447). Discussion: Home-based rehabilitation can be sustained by developing men and women caregivers’ specific health capabilities. [less ▲]

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See detailPrendre soin des personnes après AVC : réactions émotionnelles des aidants informels hommes et femmes.
Bucki, Barbara UL; Baumann, Michèle UL

in Santé Publique : Revue Multidisciplinaire pour la Recherche et l'Action (2012), 24(2), 143-156

The objective of this study was to assess the emotional response to caregiving among stroke caregivers living in Luxembourg, and to assess the social and psychological impact of strokes on households, two ... [more ▼]

The objective of this study was to assess the emotional response to caregiving among stroke caregivers living in Luxembourg, and to assess the social and psychological impact of strokes on households, two years after the event. Questionnaires were administered to 62 patient (64.4 years old)/caregiver (59.3 years old) dyads. The survey focused on: 1) residual impairments, based on the American Heart Association Stroke Outcome Classification; 2) the Caregiver Reaction Assessment (CRA – 24 items – 5 dimensions); and 3) changes in the division of household tasks (seven items). Although male and female caregivers care for patients with similar residual impairments, the study found that female caregivers were more likely to be affected by the impact of caregiving on their health and schedule and by lack of family support. Women were more likely to feel “tired all the time” (50% vs. 12.5%), to struggle to “find time to relax” (35.7% vs. 6.3%) and to feel that “others dumped caring onto them” (35.7% vs. 11.8%). Since the onset of stroke, women had also taken on more responsibilities in the household (37.5% vs. 5.9%), while men were more likely to “enjoy caring” for patients (93.8% vs. 67.9%) and to have become more involved in organizing holidays (29% vs. 5.6%) and seeing friends (20.6% vs. 10.5%). Because of the high level of exhaustion, particularly among women, caregivers are a high-risk population for the healthcare system. Interventions such as trialogue and counseling are required to meet the needs of male and female caregivers. [less ▲]

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See detailPour aller au-delà des incertitudes épistémologiques : une validation de cohérence entre des données existantes et le construit théorique du concept de « health capability » adapté aux aidants familiaux
Bucki, Barbara UL; Baumann, Michèle UL

in XIXè Congrès International de Sociologie (2012)

Une étude dont le questionnaire, adressé à 62 aidants familiaux, porte sur les répercussions émotionnelles, sociales et familiales d’un accident vasculaire cérébral (AVC) survenu deux ans auparavant, a ... [more ▼]

Une étude dont le questionnaire, adressé à 62 aidants familiaux, porte sur les répercussions émotionnelles, sociales et familiales d’un accident vasculaire cérébral (AVC) survenu deux ans auparavant, a été reprise en tentant d’approcher le concept novateur de « health capability ». Le chercheur devant s’interroger sur la pertinence des construits théoriques, notre hypothèse a été qu’il existe un recouvrement probable entre les thèmes explorés dans l’étude AVC et les dimensions de health capabilty. Une validation de cohérence effectuée par deux chercheures a confirmé cette hypothèse : 129/164 items ont pu être répartis dans 14 des 15 dimensions du concept à l’étude. Cette répartition met en lumière les informations de l’enquête qui couvrent partiellement le construit théorique et les dimensions restant inexplorées. Des entretiens semi-structurés suivis d’une analyse qualitative des discours seront réalisés afin d’identifier le sens des contenus. Lors de notre communication, nous présenterons, à l’aide d’exemples, les étapes de cette réflexion que nous avons menée pour faire face, mais aussi pour aller au-delà des incertitudes apparentes. Puis nous discuterons de l’intérêt d’une telle démarche de va-et-vient entre un concept emprunté à la littérature et une base de données issue d’une étude mise à notre disposition. Nous mettrons en évidence l’importance de penser l’incertain épistémologique afin de mieux appréhender la compréhension contextualisée de concepts émergents. [less ▲]

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See detailDay-to-day home caring for a stroke survivor, two-year post-stroke perceived psychosocial impacts for woman caregivers in Luxembourg
Bucki, Barbara UL; Lurbe-Puerto, Katia UL; Baumann, Michèle UL

in Women’s Mental Health (2011)

In the Grand-Duchy of Luxembourg (GDL) informal caregivers are increasingly requested to provide daily home care to stroke survivors to avoid institutionalization (Kjellstrom et al. 20071). As this major ... [more ▼]

In the Grand-Duchy of Luxembourg (GDL) informal caregivers are increasingly requested to provide daily home care to stroke survivors to avoid institutionalization (Kjellstrom et al. 20071). As this major life event brings upheavals to caregiver-survivor pairs, we aimed to identify and analyse the perceived psychosocial impacts for female caregivers. Method. Over 12 months, with the help of the Social Security, two-years post-stroke survivors were contacted, and 41 women (59,1 years) and 21 men (59,6 years) informal caregivers consented to participate in this cross national survey. Research assistants interviewed them at home, using face-to-face questionnaires, containing: 1) Life Satisfaction (LS) measure in accordance to the European Quality of Life Study (EQLS)2 (scale 0 - 10) ; 2) Caregiver Reaction Assessment 24 assertions (CRA) (Given et al., 19923); 3) 7 questions about the evolution of caregivers’ tasks and responsibilities in the household since the stroke onset. Means and percentages and, a comparison between sexes were estimated using t tests and chi². Results. The LS mean is lower in woman caregivers (6.84 vs. 8.00 male caregivers t = - 2.52). Women appear to be more affected in terms of physical health (33.0 ±22.1 vs. 19.1±20.1 t = 2.06), disrupted schedule (46.7 ±29.7 vs. 26.2 ±18.8 t = 2.54) and lack of family support (39.9 ±24.7 vs. 25.0 ±15.6 t = 2.18). More women responded to feel « tired all the time » (50.0% vs. 12.5% p=0.013) and found « difficult to find time for relaxation » (35.7% vs. 6.3% p=0.030). They admitted “others have dumped caring for their partner onto them” (35.7% vs. 11.8% p=0.078) and had difficulty “to get help from their family” (17.9% vs. 0.0% p = 0.073). Women considered to be more “in charge of the relationships with professionals” (52.0% vs. 6.3% p=0.003) and to “have more household responsibilities” than before the event (37.5% vs 5.9% p=0.020). Less women declared to « enjoy caring for their partner » (67.9% vs. 93.8% p= 0.049). Conclusions. Informal woman caregivers’ LS average (6.84) were one point lower than the indicator in 2007 for the GDL general population (7.85) who participated at the EQLS, near to the EU-27’ one (7.0). Our study showed their psychosocial repercussions them to require gender-based adaptation strategies to perform their caregiving role. Interventions reinforcing women’s health capability could improve their LS. Follow-up qualitative research would help to identify and understand women’s specific needs regarding these capabilities to develop. [less ▲]

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